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Lola Grace's Surgery

Organized by: Dashita Morris

Dashita's Photo
Dashita's Photo
Dashita's Photo
Dashita's Photo
Dashita's Photo

EVENT DATE Apr 27, 2017

THE STORY:

We have the good fortune to have known many great people throughout our lives. We've shared their joys and sorrows, laughter and tears, good times and bad. After all that is what love is all about. As a celebration of our love, we want to share that love with a family we know who could really use it. So in lieu of gifts, we want to help our lifelong friends Jessica and Joseph and their two children. Shortly after they were married in 2005, Jessica became pregnant with Lola Grace. She suffered complications causing Lola to be born 11 weeks prematurely. At the same time things were taking their toll on Jessica and she was diagnosed with an incurable multi organ disease called Sarcoidosis/ NeuroSarcoidosis. Those next eight years were very hard, after countless doctors' visits and several surgeries the family managed and Lola started to not only catch up but thrive. Then in the summer of 2016 that all changed. Out of the blue Lola woke up one morning unable to walk. While in the ER, a CT scan showed a tumor in Lola's jaw and ear area. A biopsy was done and the tumor was found to be benign, but unfortunately was still very concerning. Typically this type of tumor, a cementoblastoma, is small, grows around the teeth and jaw, and is failry easily removed. In Lola's case it is growing in place of her jaw bone and up into her ear. Her irregular tumor and the placement are rare in someone so young and further complicate an already difficult surgery. It is so rare, that very few doctors have seen it and even less have successfully preformed the operation. At this point and under the best circumstances, this 9 year old has at least three different operations in front of her. First a bone graft of the rib, which will be used to rebuild the jaw bone that is missing. Second they will attempt to remove all of the tumor. These surgeries are not without complications. She will lose 3-4 adult teeth in the process. Also, depending on how much the tumor goes into the ear, there is concern that she may need more bone reconstruction. She will also be left with irreversible nerve damage which will leave her permanently without feeling on the lower side of her cheek and lip and possibly effect her hearing. The recovery is painful and long. It will require her jaw to be wired shut for 6-8 weeks. If that goes well her last surgery will be to replace the permanent teeth lost. As you can imagine this is a huge burden and weight on a family that already is dealing with so much. We love them so much and our hope is that we can help them to be able to find the best and most qualified team of doctors to minimize complications and make this very stressful situation a little bit easier. We appreciate all of your support and donations. Thank you.

DONATE

To This Fundraiser

$1,525

 

20% Raised of $7,500 Goal

  • Anonymous

     

  • Anonymous

     

  • Werner & Janice Palm

    $1,000

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Organized by

Dashita Morris

This is a direct to organizer fundraiser.

Donor Comments

Werner & Janice Palm

Werner & Janice Palm

DONATION: $1,000

To Ben & Dashita for Lola Grace's surgery! 10 months ago

Anonymous

ANONYMOUS

1 year ago

Anonymous

ANONYMOUS

1 year ago

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