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Lonette Simeone

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Lisa
Lisa SAYS:
Woo hoo!!
Woo hoo!!
2 years ago
Elizabeth
Elizabeth SAYS:
Good luck Lonette on your ru…
Good luck Lonette on your run! I am working on getting more money raised for you, you and Ezra totally deserve it!!
2 years ago
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Elizabeth
Elizabeth SAYS:
Good luck Lonette on your ru…
Good luck Lonette on your run! I am working on getting more money raised for you, you and Ezra totally deserve it!!
2 years ago
see more  
Elizabeth
Elizabeth SAYS:
Good luck Lonette on your ru…
Good luck Lonette on your run! I am working on getting more money raised for you, you and Ezra totally deserve it!!
2 years ago
see more  
Lonette Simeone
Clearwater, FL United States
CROWDRISING SINCE: Jul 20, 2015
Stuff About Me:

I'm a mother of 2 beautiful boys. My youngest, Ezra, was born with Recessive Dystrophic Epidermolysis Bullosa. 

Having never heard of this before I was overwhelmed with how to care for him and devasted to hear his life would not be normal because of his very fragile skin. 

He is 7 yrs old now and he is my hero! 

Twice a day he faces dressing changes, new blisters, sores in his throat, on the eyes and anywhere there is dermis. There are many other complications because of E.B: including anemia, contracting fingers and hands, scarring in esophagus just from eating and much more.  (He was also this year diagnosed with Diabetes Type 1.)

He is SO brave & full of life and just wants to do what other boys his age are doing. 

He loves Star Wars, Legos and playing Minecraft and anything on a gaming system : )

I am doing this fundraiser to do my part to help raise money for research and hopefully one day (could never come soon enough!) a cure or treatment to help him and all the other children to live a life without pain-without E.B! 

Lots of love,

Lonette Simeone 

 

Lonette
Simeone

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CR Impact Points

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45,550

Total Impact Points

Lonette Simeone's Fundraisers

2016 Disney's Princess Weekend

2016 Disney's Princess …

Amount Raised:

$3,530

 

353% Raised of $1,000 Goal