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Amy Cherrstrom's Fundraiser:

Long Drive II Survive

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Amy Cherrstrom via Crowdrise
October 19, 2014

Results are in #LongDriveIISurvive!! Thank you for your generosity and support for #MPSII research!Congrats winners! http://bit.ly/1uqQpOO  See more

BENEFITING: National MPS Society, Inc.

EVENT DATE: Oct 12, 2014

Amy Cherrstrom

THE STORY:

Jack, our 8 year old son, came up with the idea to hold a long drive contest to raise money for Hunter Syndrome research (MPS II) and compete against his brothers. Jack's brothers, Alex and Nick, have Hunter Syndrome, a rare genetic disorder that only effects boys and causes death by the second decade in the severe forms. Due to a gene mutation, they're missing an enzyme that purges waste cells from their bodies. Alex is more severely effected at this point than Nick, as Alex has limited speech, has had multiple surgeries, and will have more surgeries to repair the damage this disease is doing to his body. Nick can talk, run, plays sports, and enjoys playing with others. Alex was diagnosed first and that basically has helped preserve Nick's life, so Nick enjoys a better quality of life for now since he was able to receive treatment beginning at 3 months old. Nick may have the same regression and loss of skills, his ability to talk, and other severe effects but there's still time to save them! More innovation in therapies is needed and we're hopeful for a cure.
 

Here's how the Long Drive Competition works:

1.) You make a donation.

2.) You'll be assigned a ball for the long drive competition. Your ball will be given to Team Jack, Team Nick or Team Alex.  One of the boys will hit your ball, a measurement will be taken and published on raisingrareboys.blogspot.com.  Oh yeah, you bet we'll take video of this!!

3.)The donor's ball that is driven the farthest by each boy will receive a special prize package of golf goodies or a special prize basket put together by the boys for that donor.  (Examples of prizes are golf apparel, a foursome of golf, a Long Drive II Survive T-shirt, and many more prizes!)

Our priorities are to fundraise for MPS II research, through the National MPS Society:

1.) Fund research to develop new treatments, such as medicine that can pass through the blood brain barrier and effect their brain function and nervous system. Without this, death occurs by the second decade of life.
2.) Fund gene therapy research
3.) Search for a cure

Thank you so much for supporting our sons!

The Cherrstrom Family

 

DONATE

To This Fundraiser

$2,495

MONEY RAISED
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  • Rachel, Paul and Connor Mickolick

    $25

  • The Chipotle Drive

    $100

  • Chris, Beth, Abby, & Jack Wilson

    $25

  • Holly, Dave, David, Anna and Andrew Carpenter

    $25

  • Barb Schmitz

    $100

  • Courtney, Tim, Belle and Joseph Daniels

    $25

  • Lindsay and Dave Caras

    $50

  • Bill & Lauri Chrisman

    $150

  • Jay and Andre

    $100

  • Kim and Lori

    $50

  • Anne, Beth's Mom!

    $20

  • Len & Beth Grodoski

    $25

  • The Belas Family

    $50

  • Matt, Steph, Bryce and Ellie

    $100

  • Ruby & Mae

    $50

  • Raul Munoz

    $50

  • Hari Katla

    $50

  • Kevin & Linda Devine

     

  • Frank, Melissa and Joey Koenig

    $100

  • Offline Donation

    $300

  • Amy & Dan Cherrstrom

    $200

  • Graven-Gelber's

    $100

  • The Bilardo Family

    $50

  • Uncle Keith & Aunt De

    $100

  • Joan Heffernan

    $50

  • Rob, Tamara, Leyna & Shay Swanson

    $25

  • The Trevino Family

    $100

  • Max and Leo Harris

    $100

  • Anonymous

    $25

  • Anonymous

    $50

  • Mike and Michelle

    $50

  • Mindy & Pete Humphrey

    $50

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125% Raised of $2,000 Goal

Fundraise for this Campaign

The Team: $2,495 TOTAL RAISED SO FAR

JOIN THE TEAM

Want to help Fundraise or Volunteer for this amazing Fundraiser? Join the Team

Donor Comments

Mindy & Pete Humphrey

Mindy & Pete Humphrey

DONATION: $50

10 months ago

Mike and Michelle

Mike and Michelle

DONATION: $50

2 years ago

Anonymous

Anonymous

DONATION: $50

3 years ago

Anonymous

ANONYMOUS

DONATION: $25

Amy, I came upon your Facebook page and saw this. You are in our prayers! -Kelley and Tom Mocho 3 years ago

Max and Leo Harris

Max and Leo Harris

DONATION: $100

3 years ago

The Trevino Family

The Trevino Family

DONATION: $100

What a great idea Jack!! You're are an awesome big brother!! 3 years ago

Rob, Tamara, Leyna & Shay Swanson

Rob, Tamara, Leyna & Shay Swanson

DONATION: $25

3 years ago

Joan Heffernan

Joan Heffernan

DONATION: $50

3 years ago

Uncle Keith & Aunt De

Uncle Keith & Aunt De

DONATION: $100

3 years ago

The Bilardo Family

The Bilardo Family

DONATION: $50

3 years ago