BENEFITING: Dysautonomia International
EVENT: Run for DREAMS
EVENT DATE: Oct 08, 2016
Loren Alexander wrote -
I am fighting for the awareness for Dysautonomia, so that no one has to go through the fearful and frustrating (and expensive!) battle of not knowing what is wrong and trying to figure it all out. (Or worse, being told that nothing is wrong, that it is "all in your head," when there clearly is!)
[W]hen I realized how common – yet unknown – dysautonomia was, I knew my reason for having this condition was to help raise awareness. Raising awareness helps create a public concern, which in turn helps generate funds for research. The more research there is, the more likelihood that we can find more treatment options and even a cure – and that gives us hope!
There are more people living with just ONE FORM of Dysautonomia than multiple sclerosis and Parkinson’s disease combined. Yet it is incredibly unknown and chronically misdiagnosed. The average time that it takes for one to get diagnosed is SIX YEARS! (When all it really requires is ONE doctor and ONE non-invasive test.) THIS is why I share my posts. We need awareness walks and rides and funds and research and knowledgeable doctors and treatment...and hope, too.
Help me make D.R.E.A.M.S. come true and give hope to 70 millions people worldwide!
#AwarenessEqualsHope #Hope4Dysautonomia #Turn6into15