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Love for Super Lucas

Organized by: Friends of Lucas

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Friends of's Photo
Friends of's Photo
Friends of's Photo
 

Closing in on $10K for Super Lucas
June 22, 2016

Hi Everyone, Just an update that in less than 24 hours we have raised almost $10k for Lucas, Lorena and Mike. Please feel free to forward this See More

THE STORY:

Mike and Lorena couldn’t have been more excited to learn they were going to be first-time parents but halfway through Lorena’s pregnancy they were devastated and scared to learn that Lucas would be born with a rare life threatening congenital heart defect called Hypoplastic Left Heart Syndrome that would require surgery soon after birth.

Lucas was born on December 22, 2015 and was immediately transferred to Boston Children’s Hospital where he was soon diagnosed with Baraitser-Winter Syndrome, a rare neurological genetic syndrome (50 known cases in the world) which caused underdeveloped brain formation abnormalities that may cause seizures and intellectual and developmental delays. At 8 days old, Lucas had surgery with a successful heart repair but soon began having difficulties breathing and failing to gain weight. To help him grow and thrive, he had a tracheotomy and gastrostomy surgery and now is ventilator dependent and receives his feeds through a g-tube.

So far, Lucas has exceeded neurological expectations, hitting typical baby milestones and has charmed his nurses and medical teams by flashing his big smile learning to blow them kisses. Unfortunately, Lucas has never been home and has spent his entire life at Boston Children’s hospital with Lorena and Mike by his side. It hasn’t been an easy road, and while awaiting the 5kg (11lb) minimum weight limit for his ventilator, Lucas suffered from two very serious episodes of respiratory distress requiring intervention to resuscitate him and was later diagnosed with pulmonary hypertension. Most recently, Mike and Lorena were making plans to bring Lucas home for the first time and 12 hours before departing he spiked a fever, went into severe respiratory distress and was soon fighting for his life. Lucas is now recovering but his medical team continues to investigate the underlying causes.

Despite the many health complications he has had to overcome in his short life, Lucas faces each day with a smile and will to fight. Lorena and Mike have aligned their priorities to provide the best for Lucas and have made many personal and professional sacrifices that parents of medically fragile children often make. But they won’t be able to care for his complex needs alone. He will require 24-hour skilled care by professionals trained to handle medical emergencies, which is not covered by insurance. Our hope is to alleviate financial stress on the family so Lorena and Mike can focus on Lucas and not worry about specialized care or unexpected medical costs. Any amount you are able to give would be very helpful and greatly appreciated.

$17,977

MONEY RAISED
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  • Conor and Meredith Flynn

     

  • Betsy McIntyre

    $100

  • Anonymous

     

  • Faith Carter Caton

     

  • Ken and Willie Zelenakas

    $200

  • Amy McNamara

     

  • EvaMarie Madera

    $30

  • Rick and Meredith

     

  • Lisa Cameron

    $25

  • Angela Tammaro

     

  • Annie Day Thorp

    $50

  • The DeBevoise Family

     

  • Patrick, Adrienne, Lucy & Andrew Bohannon

    $100

  • Dana Chivvis

     

  • The Bielen Family

     

  • Sally and Rob Littleworth

    $100

  • Niki Bartko Pardoe and Family

    $50

  • Shirley Galarza Epstein

    $100

  • Lara

     

  • Amanda Samponaro Runne

     

  • Stephanie Benedetto

    $100

  • Janet Carter

     

  • Maria Bercetche

    $50

  • Nilla Watkins

     

  • Cecily Harrison Urenay

    $100

  • Raquel

    $25

  • Molly Jnnings's mom

    $100

  • Ashley Clauss, 2000

     

  • Gillian Scanlon Imbriglia

    $100

  • The Chandler Family

    $100

  • McNeill Family

     

  • Ali Pincus + Family

     

  • Anonymous

    $100

  • Becca Raaen Raymond

     

  • The Rogers Family

     

  • Shell & Win Smith

    $100

  • Elysia Bevan Pearce

    $100

  • Kathy and Harry Clark

     

  • Emily Kimball

     

  • Jeff Turk

    $150

  • Rob Rafter

    $100

  • Mary & Paul Abare

    $75

  • Jen & Erik Drumm

     

  • Jillian Rummo

    $25

  • Ray & Kat Mata

    $100

  • Kathryn Brackenridge

     

  • Bonnie & Jerry Friedman

     

  • Anonymous

    $50

  • Susan Smith

     

  • Margo Friedman

     

  • Fiona, Tristan and Charlie Anderson Wheeler

     

  • Megan and Michael Mahoney

    $50

  • Anna Kolber

     

  • Steve & Nicole LaBrie

    $50

  • Johanna and Jeremy Simon

     

  • Anonymous

    $50

  • Alexandra Rice Thopson

     

  • Heather Loomis Tighe

     

  • Liz + Shan Hanigan

     

  • Anonymous

    $25

  • Benji & Sam

    $200

  • Karen T. & Mario B.

     

  • Wil Morales

    $100

  • Anonymous

     

  • Toby Korner

    $25

  • David Bahr

     

  • Alex Bachuk

    $50

  • Donna Wilkins

    $50

  • roberta farrell

    $50

  • Amjad Khan

    $50

  • Megan Reile

     

  • Mildred Poquez

    $50

  • Melissa Borko

    $50

  • Jenn Merritt

     

  • Jayadas

     

  • PAYEL HAZRA

    $50

  • Andrea Babcock

     

  • Eric Goldberg

     

  • Anonymous

     

  • Auria Jorge

     

  • Jon Ligi

     

  • Cosmo Scrivanich

     

  • Colin & Dylan, & Keith Lopez

    $250

  • Laurie DeFazio

     

  • Tiffany Betz

    $50

  • Maryellen DAiuto

     

  • Ana Villanueva

     

  • Anonymous

    $50

  • Annelise Bryda

     

  • Anonymous

     

  • Mike Gertrudes

     

  • Asha Devaramani

     

  • Caitlin Toombs Silverstein

    $100

  • Allison Blodgett

    $50

  • Samantha Melton

     

  • David Brenninkmeyer

     

  • Rob Hilliard

     

  • Ana Perez, Pablo de la Fuente, Isabel y Jaime

    $100

  • Tana Perez Rodriguez

    $35

  • Thomas Darsney

     

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Organized by

Friends of Lucas

This is a direct to organizer fundraiser.

Donor Comments

Thomas Darsney

Thomas Darsney

11 months ago

Tana Perez Rodriguez

Tana Perez Rodriguez

DONATION: $35

Un abrazo muy fuerte a los tres. Con carino, Tana. 1 year ago

Ana Perez, Pablo de la Fuente, Isabel y Jaime

Ana Perez, Pablo de la Fuente, Isabel y Jaime

DONATION: $100

Os deseamos lo mejor. Muchos besos desde Espana 1 year ago

Rob Hilliard

Rob Hilliard

1 year ago

David Brenninkmeyer

David Brenninkmeyer

1 year ago

Samantha Melton

Samantha Melton

1 year ago

Allison Blodgett

Allison Blodgett

DONATION: $50

1 year ago

Caitlin Toombs Silverstein

Caitlin Toombs Silverstein

DONATION: $100

1 year ago

Asha Devaramani

Asha Devaramani

1 year ago

Mike Gertrudes

Mike Gertrudes

1 year ago

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