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Andrew Stiles' Fundraiser:

Love Liv

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BENEFITING: A FOUNDATION BUILDING STRENGTH INC

EVENT: LoveLiv Cycle

EVENT DATE: Mar 13, 2016

Andrew Stiles

THE STORY:

For the second year I am hoping to raise funds for one of the sweetest girls in our daughter's preschool, Liv. I wrote some information about her condition and hopes for a cure below, but I want you to know this isn't just a random charity. Your donation will directly help a wonderful little girl who is so full of light and humor, despite all the obstacles in her life. We feel so lucky to have her in our life, and I hope you can help-out just a little. Liv was born with an extremely rare genetic condition called Nemaline Myopathy. It has a mortality rate of 66% by age 2, and Liv is now 5! She is such a champion, however she is still unable to walk or eat without assistance. Currently no treatments or disease modifying therapies exist for nemaline myopathy and few potential candidate drugs have been identified. If you donate to this cause, your money is going directly to some very citing edge gene therapy research. You can learn more here: http://loveliv.org/where-your-money-is-going/ Here is some more information about her condition: http://loveliv.org/about-nm/ Thank you from the bottom of my heart! x

DONATE

To This Fundraiser

$75

MONEY RAISED
  • Andrew Stiles

     

  • amy josh fiona poppy crosby

     

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The Team: $75 TOTAL RAISED SO FAR

Donor Comments

amy josh fiona poppy crosby

amy josh fiona poppy crosby

1 year ago

Andrew Stiles

Andrew Stiles

1 year ago