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Janet Parkhurst's Fundraiser:

Love Some 1 with Glut 1

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Janet's Photo
Janet's Photo
Janet Parkhurst

THE STORY:

On November 4th I will be running to raise awareness and money for the Glut 1 Deficiency Foundation.  Glucose Transporter Type 1 Deficiency Syndrome (Glut1 Deficiency, Glut1 DS, G1D or De Vivo Disease) is a rare genetic disorder that impairs brain metabolism. Glucose isn’t transported properly into the brain, leaving it starving for the energy it needs to grow and function. 

My daughter Maeve was diagnosed with Glut1 at age 8, but had symptoms starting at 2 months old.  It is critical to raise awareness of this disease so that children can get early diagnosis and treatment which can potentially reduce learning and physical disabilities.  While this is a rare disease, it is believe to be under-diagnosed and awareness will help to get many parents and children the answers they need to move towards recovery.  Today, ketogenic diets are the standard of care for Glut 1.  I am optimistic that new treatments and a cure are out there!

Please help me to raise awareness and fund a cure for Glut 1.  For more information please visit g1dfoundation.org

$5,182

MONEY RAISED
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  • The Parkhurst Family

    $1,000

  • Jennifer Lamson

    $100

  • David Titus

    $100

  • Mr and Mrs D Strittmatter

    $200

  • Matt Feldman

    $50

  • Holly Kulka

    $500

  • Tracey Heaton

    $500

  • The Rao Family

    $100

  • Erin Kippen & Family

    $50

  • Susan and Christopher Pondish

    $100

  • Sarah Grimaldi

    $50

  • Sclafani Family

    $20

  • Jessica and Emily

    $40

  • Rob and Tracy Bates

    $50

  • Drew Hemlock's Family (glut 1 since 1999)

    $52

  • Eleanor and Steve

    $25

  • Tom Brashear and Family

    $75

  • Douma Family

    $25

  • Anonymous

     

  • Emily and Samantha

    $50

  • Love, Sophie and Nate

    $25

  • Jennifer Caver

    $25

  • Angus

    $25

  • The Garcia Family

    $75

  • Anonymous

    $10

  • Alvaro Valdivieso

    $10

  • Milin Family

    $100

  • Anonymous

    $10

  • The Sharo Family

    $25

  • The Vreeland Family

    $100

  • Anonymous

    $500

  • Jenny

    $100

  • Margot Rosenstein

    $25

  • Michael Bouson & Joe Correll

    $100

  • JMcGinness

    $500

  • The Karl Family

    $50

  • Anonymous

    $100

  • The Gatto Family

    $50

  • Mike & Fran Jarrett

    $50

  • Lynne Witham

    $100

  • Eryka DeLima

     

  • Anonymous

    $50

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104% Raised of $5,000 Goal

Fundraise for this Campaign

The Team: $5,182 TOTAL RAISED SO FAR

JOIN THE TEAM

Want to help Fundraise or Volunteer for this amazing Fundraiser? Join the Team

Donor Comments

Anonymous

ANONYMOUS

DONATION: $50

5 years ago

Eryka DeLima

Eryka DeLima

5 years ago

Lynne Witham

Lynne Witham

DONATION: $100

I love you Maeve! 5 years ago

Mike & Fran Jarrett

Mike & Fran Jarrett

DONATION: $50

5 years ago

The Gatto Family

The Gatto Family

DONATION: $50

5 years ago

Anonymous

ANONYMOUS

DONATION: $100

5 years ago

The Karl Family

The Karl Family

DONATION: $50

5 years ago

JMcGinness

JMcGinness

DONATION: $500

5 years ago

Michael Bouson & Joe Correll

Michael Bouson & Joe Correll

DONATION: $100

We think of you guys so often! 5 years ago

Margot Rosenstein

Margot Rosenstein

DONATION: $25

5 years ago