In the books for Lulu ...
September 19, 2016
My cousin's granddaughter Talulla (known as Lulu, age 22 months) was recently diagnosed with Marfan Syndrome. This is a rare life-threatening disorder that affects the body's connective tissue, most seriously the heart, as in Lulu's case. Her Mom & Dad (Sara and Bryan) are raising awareness for research, advocacy, and education for the Marfan's Foundation by running in the 2016 New York City Marathon on behalf of the Marfan's Foundation Team Victory. I'm joining the cause by cycling 100 miles in the NYC Century. Please consider supporting them (and me) by donating and I hope to see some of you along the Century course. Thank you so much!!