Lulu's MDA Fundraiser
Organized by: Stephen Gray
MDA Jailbird: Stephen Gray Company: SEGG Media Why do Stephen & SEGG Media support MDA? We support MDA because we like helping others. We have sponsored On The River, LoveWay, and now MDA of Northern Indiana. All money raised will go to MDA of Northern Indiana & stays in Northern Indiana. So, believe it or not, I'm going to jail and I need your help. While it's not a real jail, it's even more important as I'm raising bail to help children and adults with muscle disease in my community who are supported by the vital work of the Muscular Dystrophy Association (MDA). I might not be able to rely on good behavior to get out so that's why I need your help - I need you to donate to my bail! Just click on the donation button to make a secure donation - I know that together we'll Make a Muscle and Make a Difference in the fight against muscle disease. My local camper's name is Lulu. Lulu has Limb Girdle Muscular Dystrophy (LGMD). For those of you that don't know what LGMD is, it's a group of disorders affecting voluntary muscles, mainly those around the hips and shoulders—the pelvic and shoulder girdles, also known as the limb girdles. Over time the person with LGMD loses muscle bulk and strength. LuLu now is in a wheelchair all the time, and eventually, she will need a power wheelchair as her arms won’t have the strength to move her chair. Lulu's favorite camp activities include Arts & Crafts, Horseback riding, and the craft barn. Her interests include Music, “Running” in her chair, Singing, and arts and crafts! Finally, what Lulu likes most about MDA Summer Camp is bonding with her counselors & other girls in her cabin.