Lynn's Walk for Syringomyelia
Organized by: lynn dahlgren
I suffer from Syringomyelia . I developed it after an injury in the Army to my spine. I have been living with Syringomyelia since 1999 when I was injured. This fundraiser is a walk to help Military Veterans that have been diagnosed with post traumatic Syringomyelia (SM) from an injury that occurred while serving in the armed forces. The total number of Military Veterans that suffer from Syringomyelia is unknown, as the diagnosis is controversial and many doctors associated with the military and VA system do not understand nor recognize this rare condition and misdiagnose many veterans. For people that suffer from Sryingomyelia, as a syrinx widens it compresses and injures nerve fibers that carry information from the brain to the extremities. Damage to the spinal cord often leads to progressive weakness in the arms and legs, stiffness in the back, shoulders, arms, or legs, and chronic, severe pain. Other symptoms may include headaches, a loss of the ability to feel extremes of hot or cold, and loss of bladder and other functions and paralysis. Each individual experiences a different combination of symptoms depending on where in the spinal cord the syrinx forms and how far it extends.The precise causes of Syringomyelia are still unknown. Secondary conditions over time will arise from having Syringomyelia such as chronic pain, depression, fibromyalgia, scoliosis, etc. As stated before, each individual experiences a different combination of symptoms. Myself and other Veterans suffer from lack of proper medical care, preventive health care measures, adequate assistive medical equipment and adaptive homes that meet our needs. With a widening band of people learning about and understanding Syringomyelia, Veterans can be helped to improve their health, home life and receive relief from mounting medical and home expenses that they take upon themselves due to the lack of support they are currently receiving.