MAD For Mady (Make a Difference For Mady)
Organized by: Kimberly Weaver
Mady's health updates..
October 30, 2016
I am starting a fund raising campaign online for my 9 year old granddaughter, (Mady) Madyson Paije VanRooyen. Mady was rushed to Lee Memorial after she was seen at the Dr's office on September 9, 2016. She had missed school the previous day and it was believed that she had contracted an eye infection, but sadly this was not the case. Lee Memorial sent her by ambulance to Golisano Childrens' Hospital at HealthPark. She had two surgeries performed there on Saturday, September 10th, as her right eye was protruding substantially and it became apparent that this was a much more serious situation than initially perceived. The first surgery was to remove a hematoma from behind the eye. After the surgeon completed this procedure, he noticed that the eye was still protruding and this revealed that there was still an issue. He went back in a second time behind her eye and found a tumor. He retrieved what he could as this type of tumor makes it difficult to do so without causing further damage to the eye. After these procedures were done and specialists were called in, it was determined that they could not deal with Mady's case. After looking at the tumor it was believed that they were dealing with Rhabdomyosarcoma (RMS), an extremely rare cancer. Mady was then transferred to Miami's Holtz Childrens' Hospital where a more specialized team of physicians would be available for her and she would be right across from the National Eye Institute. Mady was transferred to Miami's Holtz Childrens' Hospital in the early morning hours of September 11th. Another surgery was performed Sunday and they attempted to take more of the tumor out. It has formed itself in the striated muscles behind the eye. This was her third surgery in two days. On Mady's 9th birthday, Monday, September 12th , it was confirmed that she in fact has RMS.
Rhabdomyosarcoma, RMS, is an extremely rare cancer. There is little know about it as it has only manifested in the last 20 years. It effects only 1-4 children in every million. There are approximately 250 cases reported annually. It is more rare in girls than boys with a 5:3 ratio.
I am asking everyone to consider making a donation. In addition to Mady's cancer treatments she may need eye restoration surgeries. Mady's family just relocated to Lee County from Fort Wayne, Indiana. Cala, Mady's mom has only been employed a few months and has no insurance. Nathan, Mady's stepfather, is currently unemployed. Todd, Mady's father lives in Indiana and therefore needs to fly down to be with Mady. Your donations will help cover medical bills, travel expenses, and household bills due to lost wages. Any amount you can find in your heart to give would be GREATLY appreciated. Together we can MAD For MADY ( Make A Difference)! Thank you and God Bless!