BENEFITING: Calliope Joy Foundation
In 2013, a year after Pat and Maria Carr learned that their youngest child had one of the 50 forms of leukodystrophy, a degenerative, genetic neurological condition (in the same family as Tay-Sachs disease), they knew they wanted to help. It was too late to save Cal, but the Carrs were determined to give children with leukodystrophy a different sort of future.
So, Pat and Maria and their friends started selling cupcakes. Since then, bake sales hosted in parking lots and churches (one cupcake sale took place in a blizzard), have grown into Cal's Cupcake Challenge, the world's biggest cupcake celebration at the Cynwyd Elementary School in Bala Cynwyd, PA.
To date, the Calliope Joy Foundation has sold 30,000 cupcakes and raised close to $300,000. This fundraising helped launch the nation's first Leukodystrophy Center of Excellence at the Childrens Hospital of Philadelphia (CHOP).
On January 25, 2018, Cal's foundation will present $110,000 to the doctors and researchers at the Children's Hospital of Philadelphia to support innovative care and advance the research that will make miracles possible for children with leukodystrophy.
Lear more about Cal and the cupcakes here.