ANGIOMA ALLIANCE wrote -
REGISTRATION IS FREE!
RAISE/DONATE $35 MINIMUM AND RECEIVE A FREE TECHNICAL T-SHIRT!
On Saturday, October 21, 2017 at Zuma Beach our 2nd Annual Angioma Alliance Walk will take place to benefit the non-profit organization Angioma Alliance, the only patient and research organization supporting those affected by cerebral cavernous malformations (CCM). We invite you to take part in this community-driven, family-friendly event. Highlights include food and refreshments, raffle, auction, entertainment, and many family-friendly activities. Angioma Alliance supports people affected with CCM, who develop abnormal blood vessel lesions in the brain that can hemorrhage and cause strokes and seizures in both children and adults. People with hereditary forms of the illness can develop many cavernous angiomas in a lifetime. Currently, brain surgery is the only treatment. Angioma Alliance is working with researchers to develop medications that will prevent hemorrhage and prevent development of more lesions. Funds from our walk will be used to support Angioma Alliance’s DNA and Tissue bank, a patient registry, an international scientific meeting, and the development of clinical centers of excellence. We are driving research toward a cure! Sponsorship opportunities are listed on the following page. Angioma Alliance is a 501(c)3 non-profit organization. All donations, including gift-in-kind donations, are tax deductible to the extent allowed by law. Our federal EIN is 02-0600697. Collectively, our efforts result in a nationwide community bound together by cavernous angioma, but we don’t let that define us, it only empowers us! For more information about cavernous angioma and Angioma Alliance go to www.angioma.org.