Manny Alvarez: From Heartbreak To Hope
Organized by: Manuel Alvarez
Manny and the Alvarez Family would like to thank everyone for their prayers, support and donations. At this time, Manny is not in need of monetary support for his medical expenses. We are overwhelmed with all the support!
The family has started the Manny Alvarez Foundation to raise funds to support ASPS-specific research and bring awareness to the disease. By building relationships with clinicians and researchers, we will help identify and fund research relevant to ASPS. Donations made will benefit many, including Manny, in their fight against ASPS. All donations to the foundation are tax-deductible (EIN: 47-2229137). Help us Spear Sarcoma!
A year ago, at the age of 22, Manny Alvarez discovered lumps on his arm and leg. After multiple doctor visits, Manny was diagnosed with a very rare form of cancer known as ASPS: Alveolar Soft Part Sarcoma. The disease had already spread to his lungs and he was stage four. The more the family researched the less resources they found for ASPS and the treatment options available were scarce.
About the foundation:
Alveolar Soft Part Sarcoma (ASPS) is an atypical sarcoma, because it involves a specific breaking and joining event between two chromosomes, called an “unbalanced translocation.” Highly vascular tumors are formed on soft tissue within the body. Symptoms are often undetected until the disease has metastasized and secondary symptoms are present. In Manny’s case, the secondary symptom appeared as a respiratory issue.
ASPS is among the least common sarcomas representing approximately 15-80 cases nationwide each year – less than 1% of sarcomas. Patients range from adolescents to young adults.
Because of the rarity of this type of sarcoma, treatment options are often extremely limited. Forms of treatment such as chemotherapy, surgery and radiation have not proven fully effective for the long-term treatment of the disease. Very early clinical trials utilizing inhibitor therapies have shown some response, but further research is required. Because the clinical trials are still in early stages, long-term prognosis of patients is unknown.
Sarcoma research received less than 1% of cancer research funds.
The foundation’s motto, “Spear Sarcoma,” came about for Manny’s love of spear fishing and boating.
For more information contact firstname.lastname@example.org or visit our website at www.spearsarcoma.com.