BENEFITING: The Multiple System Atrophy Coalition
March is Multiple System Atrophy Awareness Month.
Please DONATE now!
Public support is requested to create greater awareness of this little known fatal neurological disease.
Multiple system atrophy (MSA) is a rare disease with approximately 15,000 diagnosed patients in the US at any given time. As many as 35,000 more are misdiagnosed with another disorder, most commonly Parkinson's Disease.
MSA results in the degeneration of nerve cells in several regions of the brain that affect abilities most people take for granted. Initial symptoms may include loss of balance, fainting due to severely low blood pressure (neurogenic orthostatic hypotension), bladder and bowel issues, speech and swallowing difficulties, sleep disturbances, breathing problems, rigidity and tremors. Over the course of 5 to 10 years, victims are robbed of their ability to walk, talk, chew, swallow and breathe. There are no medications available to stop its relentless progression.
The Multiple System Atrophy Coalition® is the leading nonprofit 501(c)3 organization in North America standing up to this little known, rare disorder. Made up of dedicated volunteers, The MSA Coalition® has a primary mission of funding research leading to the discovery of a cure. The MSA Coalition also provides much needed patient and caregiver support, educational resources, and advocacy to create awareness and to fight for issues important to the MSA community.
Please donate today to ensure a better tomorrow for those with MSA.
The MSA Coalition maintains a dedicated Multiple System Atrophy Research Fund used to award grants to MSA specific research projects. To ensure the best research is funded The MSA Coalition has a world-class scientific advisory board (SAB) to review and award research grants to the most promising MSA research proposals.
Other important services and programs provided by The MSA Coalition include:
The MSA Coalition Annual Patient/Caregiver Conference: The conference is very important as it provides a chance to meet others affected by MSA and a chance to learn from leading MSA healthcare providers. Each year the conference is videotaped to provide educational material for those not in attendance.
The MSA Coalition Toll-Free Support Hotline: 1-866-737-5999 The Hotline is a service provided by MSA Coalition volunteers. Patients, caregivers and families can call for emotional support and compassion as they face this horrible disease.
Education: The MSA Coalition now sponsors continuing medical education (CME) programs for healthcare providers to improve recognition, diagnosis and treatment of MSA. The Coalition also provides educational material and events for patients and caregivers.
Advocacy and awareness: The MSA Coalition works in partnership with other MSA and rare disease organizations to advocate for important MSA related issues such as disability coverage, orphan drug legislation, and NIH research funding.
Because volunteers run the Multiple System Atrophy Coalition, administrative expenses are kept very low. The majority of money raised goes directly into The MSA Research Fund, with a smaller portion being used for The MSA Coalition’s other support, education and advocacy initiatives.
Please DONATE now.