We are walking in honor of our daughters and raising money to support research and other projects that will help local kids with cancer and their families.
Our first child, Madeline, was diagnosed with cancer in December 2003, when she was almost five months old with tumors in her bladder and at the base of her spine. At the time, the diagnosis we were given for her was Undifferentiated Sarcoma. The cancer responded somewhat to surgery and chemotherapy, but before she’d completed treatment, it spread to her brain and spinal fluid. She died in August 2004 at 13 months.
In October 2008, her baby sister Annette was born. Ten weeks later, our worst nightmare was confirmed when tumors were found in Annette’s brain and spine. Annette’s diagnosis was Atypical Teratoid/Rhabdoid Tumor (ATRT), a rare and especially aggressive tumor found mostly in children under three. It was caused by an inherited genetic mutation that both girls were found to have. We learned at that time that Madeline’s diagnosis should have been Malignant Rhabdoid Tumor. Annette endured months of surgeries, chemotherapy, radiation, and painful side effects of both the disease and its treatment. Eventually she succumbed to necrosis in her brain from the radiation treatments. We said goodbye to her in September 2009, just two weeks before her first birthday.
Please join us!