2 Marathons, Boston to Big Sur the Margie Steele Foundation
Organized by: Brady Hoover
EVENT DATE Apr 26, 2015
The Margie Steele Foundation believes that money for research will help find a cure so that future generations will be spared the heartbreak of Young Onset Alzheimer’s Disease. Young onset affects individuals younger than 65 and many, as Margie was, are in their 40's and 50's. They are in the midst of raising their families or in the middle of their careers. Getting an accurate diagnosis at such a young age can be a long and frustrating process. The slow deterioration of one's cognitive function and the subsequent inability to care for oneself continues on for a decade or more. It starts with inexplicable changes in behavior and slight memory issues and culminates with losing the ability to respond to one’s environment, to carry on a conversation and eventually, to control all movement, including walking and swallowing.
This illness disrupts the daily life for many, many years of the individual as well as the family. Beyond the devastating physical and emotional toll of witnessing this fatal brain disease, the family is responsible for managing the necessary long term 24 hour care. The cost of this care is exorbitant and not covered by insurance so many families will be financially wiped out in the process.
Young Onset Alzheimer's is an insidious disease that slowly unravels the mind and the self. It shakes families to the core and forces them to adapt in ways they never imagined.
More than 200,000 people in the US have Young Onset Alzheimer's