BENEFITING: Epilepsy Foundation of Metropolitan New York
Our daughter Marina Yllanes is 10 years old. She has been battling epilepsy since the age of 4. It has been a very frustrating process trying to figure out what medications work for her and how to keep her happy. We went from doctor to doctor. Thanks to Dr. Rami Grossman for referring us to Dr. Steven Wolf and NP Patricia McGoldrick and our Neurosurgeon Dr. Saadi Ghatan. They are an AMAZING team! Marina has gone through many EEG'S, video EEG's, MRI's, petscans, and surgeries. We are excited to have, god willing, reached what we hoped for, a seizure free life. About three weeks post operation of the removal of Marina's anterior right temporal lobe of the brain she is doing great. She has had 2 seizures since the surgery as opposed to having seizures on a daily basis. She is still on medication but we hope she will continue to do well and one day be seizure free.
She is a very strong young lady and is eager to help find a cure so that no one goes through what she has and is going through. We would like to make other parents aware that there are many options out there to make our children live a life seizure free.
Please support Marina and our family as we walk in hopes of a cure!