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Marissa Hughes

Marissa Hughes
Boston, MA United States
CROWDRISING SINCE: Mar 06, 2015
Stuff About Me:

Hi Everyone! 

I am pleased to announce that I am running the NYC Marathon for HDSA this year. This will be my second year running NYC but my first time running for a cause that I am personally connected to. 

Huntington's Disease, also known as HD, is a genetic, neurodegenerative "family" disease.  It is always fatal with no cure currently.  HD is a very rare disease, with approximately 30,000 people in the U.S. gene positive, and another 200,000 more at risk. 

What is HD? Think of it as a COMBINATION of the following: Alzheimer's, Parkinson's, ALS, schizophrenia, and bipolar disorder. Due to the horrific nature of Huntington's, it is labeled "The Devil's Disease". 

HD has ravaged my family for generations. For as long as I can remember, Huntington's Disease has always been a part of my life; a family curse, if you will. My mom had HD, as does her brother. Their father, and 3 of his 4 siblings tested gene positive for Huntington's, and their mother before them. What does this mean for me? I am currently at-risk for HD; meaning I have a 50% chance of testing gene positive. 

Running 26.2 miles will be the easy part of this journey as I am constantly reminded of the cause I am running for and all of those I have lost and continue to lose to "The Beast". 

Please, support me in my goal to raise funds for the cause I am running for. All that is raised will assist the HD commuinity, medical research for treatments, and most importantly, a cure. 

Thank you ALL so much! 

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CR Impact Points

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CR Impact Points

If you're seeing the grey VOTE button, you should feel great about yourself. It means you already voted for Marissa this month. Come back next month and vote again if you still love Marissa. Thanks to your vote, Marissa earned 100 CrowdRise Impact Points (CIPs). CIPs can earn you the highly coveted, highly respected CrowdRise Royalty Status.

750

Total Impact Points

Marissa Hughes' Fundraisers

Huntington's Disease Society of America NYC Marathon 2015

Huntington's Disease So…

Amount Raised:

$50

 

1% Raised of $3,500 Goal