I am pleased to announce that I am running the NYC Marathon for HDSA this year. This will be my second year running NYC but my first time running for a cause that I am personally connected to.
Huntington's Disease, also known as HD, is a genetic, neurodegenerative "family" disease. It is always fatal with no cure currently. HD is a very rare disease, with approximately 30,000 people in the U.S. gene positive, and another 200,000 more at risk.
What is HD? Think of it as a COMBINATION of the following: Alzheimer's, Parkinson's, ALS, schizophrenia, and bipolar disorder. Due to the horrific nature of Huntington's, it is labeled "The Devil's Disease".
HD has ravaged my family for generations. For as long as I can remember, Huntington's Disease has always been a part of my life; a family curse, if you will. My mom had HD, as does her brother. Their father, and 3 of his 4 siblings tested gene positive for Huntington's, and their mother before them. What does this mean for me? I am currently at-risk for HD; meaning I have a 50% chance of testing gene positive.
Running 26.2 miles will be the easy part of this journey as I am constantly reminded of the cause I am running for and all of those I have lost and continue to lose to "The Beast".
Please, support me in my goal to raise funds for the cause I am running for. All that is raised will assist the HD commuinity, medical research for treatments, and most importantly, a cure.
Thank you ALL so much!
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