BENEFITING: FAMILIES FOR FRAGILE X
EVENT DATE: Dec 05, 2015
Families for Fragile X is made up of parents, friends and relatives committed to bringing awareness, education and research to Fragile X Syndrome.
Paul and I first found out that Matthew was diagnosed with Fragile X Syndrome at 14 months old. The diagnosis came after months of trying to figure out why he was severly delayed in all of his milestones. After that everything changed, including our dreams that we had for him. We had to re-adjust. We focused on therapies and medications instead of playdates and team sports. We struggled trying to find information about Fragile X, so we created Families For Fragile X.
Matthew is 10 years old now. He is still going to therapies daily and medications continue to be trial and error. His personality is starting to come out though. He has a great sense of humor and loves to make you smile. His hugs are unlimited! And his favorite past time is still going 50mph on Biscayne Bay!
This is a crucial time for the world of Fragile X. There have been many new discoveries and links to Alzheimer's, Parkinson's, and Autism. But there is not enough funding to implement this research. So I am asking for your help in making a donation. Your dollars do make a difference. Whether it is a start-up research grant or so a family can receive evaluations at the local Fragile X Clinic.
Please give whatever you can.
Thank you for your conitinued support.
Michele and Paul
A CRASH COURSE IN FRAGILE X...It's the LEADING genetic cause of AUTISM with 33% of individuals with Fragile X, also having Autism.1 in 150 women have the gene that causes Fragile X (it can also cause inferetility issues in those that are carriers.).1 in 100,000 people have Fragile X and symptoms can include cognitive delays, seizures, speech delays, anxiety, ADHD and sensory dysfunction.