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FAMILIES FOR FRAGILE X's Fundraiser:

Matthew's Team

FAMILIES FOR FRAGILE X's Photo

THE STORY:

Families for Fragile X is made up of parents, friends and relatives committed to bringing awareness, education and research to Fragile X Syndrome. 

Paul and I  first found out that Matthew was diagnosed with Fragile X Syndrome at 14 months old.  The diagnosis came after months of trying to figure out why he was severly delayed in all of his milestones. After that everything changed, including our dreams that we had for him. We had to re-adjust. We focused on therapies and medications instead of playdates and team sports.  We struggled trying to find information about Fragile X, so we created Families For Fragile X.

Matthew is 10 years old now.  He is still going to therapies daily and medications continue to be trial and error.  His personality is starting to come out though. He has a great sense of humor and loves to make you smile.  His hugs are unlimited! And his favorite past time is still going 50mph on Biscayne Bay!

This is a crucial time for the world of Fragile X.  There have been many new discoveries and links to Alzheimer's, Parkinson's, and Autism.  But there is not enough funding to implement this research.  So I am asking for your help in making a donation.  Your dollars do make a difference.  Whether it is a start-up research grant or so a family can receive evaluations at the local Fragile X Clinic.  

Please give whatever you can.

Thank you for your conitinued support.

Michele and Paul

 

 

A CRASH COURSE IN FRAGILE X...It's the LEADING genetic cause of AUTISM with 33% of individuals with Fragile X, also having Autism.1 in 150 women have the gene that causes Fragile X (it can also cause inferetility issues in those that are carriers.).1 in 100,000 people have Fragile X and symptoms can include cognitive delays, seizures, speech delays, anxiety, ADHD and sensory dysfunction.

 

 

DONATE

To This Fundraiser

$9,336

MONEY RAISED
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  • Leah Singer

    $50

  • The Stone Boys

    $36

  • J Deville

    $25

  • Amy & William Wildstein

    $118

  • Nate LaTour

    $250

  • Allison Hertog

    $100

  • Christina Burns

    $50

  • Henry Arencibia

    $500

  • Anonymous

     

  • Alan & Karen Jones

    $100

  • Judith and Richard Jacobs

    $1,000

  • Blake Sando Jr.

    $100

  • Anonymous

    $25

  • Salstein Family

    $50

  • The Berenguer Family

    $2,000

  • Nicole Johnson/Hafer Company

    $50

  • Backer Aboud Poliakoff & Foelster

    $250

  • Carly Chazen Stolzer & Family

    $36

  • Regan & Miriam

    $100

  • Gil Neuman

    $180

  • The Levine's

    $100

  • Michele and Robert Stone

    $100

  • Laura Shuping

    $50

  • Laura Armenteros

    $100

  • Marilu Lumpuy

    $100

  • Connections Elevator

    $1,000

  • Lisbeth & Michael Bustin

    $100

  • Jeff Ulm

    $100

  • Danielle Chayot

    $500

  • Stephanie Gordon

    $50

  • Anonymous

    $175

  • Jill and Ira Rakoff

     

  • Gloria Cruz

    $100

  • Oscar Becerra

    $75

  • Stokes Family (Amy, Ricky, Ellie, Spencer)

    $250

  • Sandy & Keith Bennett

    $180

  • The LEVENTHAL family

    $100

  • Mia, Eli, Warren and Eileen

    $100

  • Unified Technology Group

    $300

  • The Kaufman/Gomez family

    $50

  • Arencibia Family

    $250

  • Susan and Bert Traeger

    $100

  • Debbie Berngard

    $50

  • The Goldmans

    $100

  • Jennifer Zelman

    $100

  • Rob & Kim Lazar

    $36

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187% Raised of $5,000 Goal

Fundraise for this Campaign

The Team: $9,336 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

FAMILIES FOR FRAGILE X

Amount Raised

$9,336

 

187% Raised of $5,000 Goal

Fundraiser Title

Oscar Becerra

Amount Raised

$0

Donor Comments

Rob & Kim Lazar

Rob & Kim Lazar

DONATION: $36

2 years ago

Jennifer Zelman

Jennifer Zelman

DONATION: $100

For Mathew! 2 years ago

The Goldmans

The Goldmans

DONATION: $100

2 years ago

Debbie Berngard

Debbie Berngard

DONATION: $50

2 years ago

Susan and Bert Traeger

Susan and Bert Traeger

DONATION: $100

2 years ago

Arencibia Family

Arencibia Family

DONATION: $250

For Matthew ! 2 years ago

The Kaufman/Gomez family

The Kaufman/Gomez family

DONATION: $50

Go team Matthew!!! 2 years ago

Unified Technology Group

Unified Technology Group

DONATION: $300

2 years ago

Mia, Eli, Warren and Eileen

Mia, Eli, Warren and Eileen

DONATION: $100

2 years ago

The LEVENTHAL family

The LEVENTHAL family

DONATION: $100

Sorry we can't be there! 2 years ago