Matts Mission 2 battle Huntington's & Ankylosing Spondylitis
Organized by: Angela Keller
In 2009 Matt was diagnosed with Ankylosing Spondylitis. He was quickly loosing his ability to walk and lost all feeling below the waist. With prayers and a fabulous physician & surgeon, mat had back surgery. The surgeon had said he had the bones of an 80 yr old at just 45. Screws, rods & pins were placed in his lower spinal column & slowly over the next few months, Matt regained more than half the feeling in his legs & most bodily functions. We thought we were out of the woods with only a few surgical set backs.
After spine surgery, Matt was diagnosed with epilepsy. It took months to finally get his seizures under control, but again we were blessed. Just a few medications and his seizures pretty much disappeared. For the next Year, Matt went from wheel chair, to walker, to cane. We were so happy he could walk virtually unassisted.
Then during 2012, his disease began to progress quickly. While walking to the car, to go to a doctor's appointment, Matt experienced excruciating pain in his right leg (the good leg with feeling). At the doctors appointment, they took x-rays and discovered his hip had broke. The deterioration of his bones had progressed so badly, his hip fractured under just his standing weight (180 lbs). At this visit we also discovered his knees were so arthritic that had his hip not broke, they would have said he needed knee surgery first.
After hip surgery, Matt was forced to recover quickly so we could move on to knee surgery 8 months later.
Again, he was extremely fortunate, &, although recovery was longer & he had to overcome 2 bouts of post-op pneumonia, Matt worked hard to regain strength so he could go back to work, as the medical bills were quickly mounting. He had been experiencing uncontrolled shaking, but we dismissed it as part of his epilepsy. To our dismay, we found out it was something much more serious. Matt was diagnosed with Huntington's. With this information, we said we can handle this, & said we have over come many obstacles, we will deal with one more.
3 months ago, However, our good fortune ran out. On Matts 1st day cleared to drive and return to work, he was hit by an uninsured driver, straight in the driver side door. His fabulous new left knee tore all the way through the skin, and the screws and rods in his back, we're not quite able to withstand that direct impact.
Matt is beyond square 1, & now, after more surgeries, he is fighting to regain his strength to walk again. We have been tiring hard to keep our heads above the mounting bills & have passed the point of no return. We have tried everything and have over extended ourselves financially.
We are seeking funds to help with the medical bills.