Skip to content
mavishillin's profile image - click for profile

Mavis Hillin's Fundraiser:

Mavis Hillin - LoveLiv Cycle

Mavis' Photo

BENEFITING: A FOUNDATION BUILDING STRENGTH INC

EVENT: LoveLiv Cycle

EVENT DATE: Mar 13, 2016

Mavis Hillin

THE STORY:

EVENT DATE: MAR 13, 2016

For its fourth annual fundraiser benefitting A Foundation Building Strength (AFBS), LoveLiv will once again have a Soul Cycle ride! AFBS remains the only non-profit worldwide dedicated to finding treatment for Nemaline Myopathy, a rare muscle disease that Liv has. People with NM, including Liv, generally cannot eat, breathe and walk on their own. Life expectancy is greatly reduced due to respiratory complications. Although Liv has made great strides, she just turned 4 years old and still cannot walk or crawl, and relies on a feeding tube for some of her nutrition.  Like so many with NM, her speech is affected by severe muscle weakness in her mouth.  

 

With your help, we can find treatment to better Liv's life and those with NM.  AFBS is seeking to fund a gene therapy study for Nebulin based Nemaline Myopathy, targeting the same mutation Liv has.  If this study is successful, Liv could have treatment in a few years.  This is one of the most exciting proposals we have received and we need your help!    

 

Date: Sunday, March 13, 2016

Time: 2:30PM - 3:30PM

Place: SoulCycle - 8820 Washington Blvd, Culver City, CA 

Registration is limited to 54 participants. Each participant must fundraise $500 or more to spin.

 

Instructions on How To Participate:

Click "Donate to a Fundraiser."

DONATE

To This Fundraiser

$2,551

MONEY RAISED
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  • Anonymous

     

  • Anonymous

    $250

  • Chris Hillin

    $500

  • Harry

    $100

  • Perdews

    $50

  • Thomas G. Hillin

    $250

  • Jer

    $10

  • Anonymous

     

  • Shepherd Sieg

    $150

  •  
  •  
  •  

Donor Comments

Shepherd Sieg

Shepherd Sieg

DONATION: $150

Go Hudson's mommy! 2 years ago

Anonymous

ANONYMOUS

2 years ago

Jer

Jer

DONATION: $10

2 years ago

Thomas G. Hillin

Thomas G. Hillin

DONATION: $250

2 years ago

Perdews

Perdews

DONATION: $50

Go Mavis! 2 years ago

Harry

Harry

DONATION: $100

2 years ago

Chris Hillin

Chris Hillin

DONATION: $500

2 years ago

Anonymous

ANONYMOUS

DONATION: $250

2 years ago

Anonymous

ANONYMOUS

2 years ago