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Maxson's Miles

Organized by: Michelle Ternes

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THE STORY:

Maxson Christian was born in November 2012. He was a healthy little boy who was given a clean bill of health before leaving the hospital. Maxson was growing and hitting milestones such as sitting, attempting to crawl and feeding himself. By around 9 months old his Mom referred to him as “an army crawling machine”. That was about to change. Maxson eventially stopped bearing weight on his legs, kicking and standing for his parents. His parents also noticed his legs beginning to drag behind him while he would army crawl. In November 2013 they received a referral to a pediatric neurologist. After a complete assessment and full panel of bloodwork, Maxson was diagnosed with Spinal Muscular Atrophy (SMA).
SMA is part of a group of muscle disorders that affect the control of muscle movements. It leads to weakness and wasting of muscles used for activities such as crawling, walking, sitting, controlling head movements and swallowing. There is no cure and no treatment for SMA.
Unfortunately, Maxson’s SMA has continued to progress. He can no longer army crawl and has lost his ability to use his upper arms. He can’t lift his sippy cup himself. Maxson and his family have a long road ahead of them, but they aren’t running this road alone.
This fall I will conquer several races; a 5K, a 10k, a half marathon and a 7 mile cross country race. From August through November I will put in a total of over 300 running miles. Every step I take will be dedicated to this sweet little boy. I’m asking you to partner with me as I take on this running journey. I will be raising money to help the Christian family offset some of the many expenses they have/will continue to incur as Maxson’s disease progresses. If you have the means, please donate. No amount is too small! For those of you that can’t donate money, there are other ways you can help. Visit the websites below and educate yourself on SMA. Share the Maxson’s Miles page with others. Pray for Maxson and his medical team. Pray for his family; Erica, Mark, Connor and Miles. Pray for the many researchers to find a CURE for SMA. Leave positive and inspirational comments for the Christian Family. Do whatever you feel moved to do. Let’s let Maxson and his family know that we’re by their side as they run this crazy road that life has laid before them. Help them know they are not fighting SMA alone!

http://fsma.org/
http://mda.org/disease/spinal-muscular-atrophy
http://www.fightsma.org/

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Organized by

Michelle Ternes

This is a direct to organizer fundraiser.

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Michelle is still setting up this fundraiser so please check back so you can support Maxson's Miles.

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