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Lymphatic Education & Research Network (LE&RN)'s Fundraiser:

The Colette McDowell Campaign to Fight Lymphatic Disease

Lymphatic Education & Research Network (LE&RN)'s Photo
Lymphatic Education & Research Network (LE&RN)'s Photo
Lymphatic Education & Research Network (LE&RN)'s Photo

THE STORY:

Colette McDowell was born on May 17th, 2016. Two weeks before she was born, we learned Colette had fluid accumulating in her lungs, abdomen and skin. Lauren was admitted to the hospital so doctors could monitor Colette around the clock. Later, we learned that the cause of the fluid is a rare lung disease called pulmonary lymphangiectasia, basically a “leaky” lymph system in her lungs. Until recently, that diagnosis was considered to be near universally fatal. We were told that if we brought Colette home, the best we could hope for was long-term oxygen support.

After 114 days in the neonatal intensive care unit, including 38 days on a ventilator, Colette came home. She defied the odds and required no oxygen support of any kind. Other than a careful diet, use of an inhaler and regular medical appointments, Colette is thriving at home with her brothers. The doctors and nurses on our team refer to Colette as a miracle in the literal sense of the word. Nothing is promised, but we are blessed to be where we are and I know love and prayer had a lot to do with that.

Research into lymphatic diseases is chronically underfunded, especially rare cases like Colette. If you would like to help, I am working closely with the Lymphatic Education and Research Network on a variety on initiatives that could use your support. Lauren and I would be grateful for anything you can contribute!

About Lymphatic Disease and LE&RN

Up to 170 million people around the world suffer from lymphatic diseases and lymphedema. NIH estimates that those born with primary lymphatic diseases could be as high as 1 in 300 live births.  However, not only is little still known about these diseases, there is a dearth of research on the horizon focused on new treatments and cures. Lymphatic diseases always dramatically affect quality of life, can severely compromise life expectancy and may also result in malformations. We cannot accept this. We need to fight for research that will bring new hope for those with these diseases. 

Each year, the Lymphatic Education & Research Network (LE&RN) offers a limited number of travel awards to Ph.D. and postdoc students to defray registration and travel costs associated with attending lymphatic research conferences. Tomorrow’s research breakthroughs will only come if we attract the best and brightest into the lymphatic field. 

In June 2017, the world’s leading lymphatic researchers will meet at the Lymphatic Forum in Chicago to present their latest findings. The goal is to award scholarships to up to 20 young researchers so that they can attend this conference. They will also be asked to prepare poster presentations of their research, and financial awards will be given to those presenting the most promising research. 

*The McDowell Family will be matching the first $10,000 of donations to support scholarships and poster awards at the Lymphatic Forum.

The Lymphatic Education & Research Network is a 501(c)3 nonprofit established in 1998 to fight lymphedema and lymphatic disease through education, research and advocacy. 

DONATE

To This Fundraiser

$7,550

MONEY RAISED
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  • Mike Meyers

    $25

  • Amy & Joshua Baer

    $25

  • The Paul Family

     

  • Lauren & Ryan Taylor

    $25

  • Colette

    $25

  • The Freedmans

    $50

  • Sheleen and Jack Anstandig

    $250

  • Aaron Rose

    $100

  • The Schoop Family

    $25

  • Edie & Breaux Walker

    $25

  • Gary McDowell

    $1,000

  • Joe Mathein & Family

    $50

  • Tatiana Greene

    $50

  • Rachel Erdos

    $20

  • Niki and Sang Luu

    $250

  • Laura Taylor

    $25

  • mary kate

    $25

  • Matt and Tina Foley

    $50

  • Alisa Allen

    $50

  • Virginia Dorn

     

  • Diane Henson

    $50

  • George Mindy Boston & Braylen

    $50

  • Kate Caccamo

    $25

  • Jared and Alexis Smith

     

  • Jonathan Geilhufe

    $100

  • Lori Dorn

    $100

  • Veronica Crews

    $50

  • The Horn Family

    $25

  • Cortney Michalosky

    $25

  • The Bolger Family

     

  • Olivia and James

    $50

  • Jeff Judy

    $250

  • Seema Kamath

    $25

  • Anonymous

     

  • Melissa Kroll

    $25

  • Ellen

    $100

  • Kochalski Family

     

  • Anonymous

     

  • Sheets Family

    $50

  • Todd Phillips

    $1,550

  • Jon & Jenn Pienovi

    $250

  • Bendee

     

  • Anonymous

    $500

  • Melissa & Josh White

    $100

  • John D

    $100

  • The Fryers

    $250

  • Donald Robke & Wendy Eilbacher

    $25

  • Emily and Jason Poague

     

  • Cecilia and Christopher poggi

    $200

  • Ellen Fox

    $30

  • The Terino Family

    $500

  • Tina-Steve-Brandon Sizemore

    $25

  • Calvary Presbyterian Church

    $100

  • Kae Penner-Howell

    $25

  • Michelle Eugeni

    $250

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Donor Comments

Michelle Eugeni

Michelle Eugeni

DONATION: $250

3 weeks ago

Kae Penner-Howell

Kae Penner-Howell

DONATION: $25

for Colette and a bright future 3 weeks ago

Calvary Presbyterian Church

Calvary Presbyterian Church

DONATION: $100

In tribute to the perseverance and beauty of Colette, the McDowell family, and all navigating lymphatic disease. Love, John & the team at Calvary. 2 months ago

Tina-Steve-Brandon Sizemore

Tina-Steve-Brandon Sizemore

DONATION: $25

Friends of the Dorn Family! Blessings and Prayers for your Coletteð 2 months ago

The Terino Family

The Terino Family

DONATION: $500

Such an inspiring little beauty -- sending thoughts, prayers, and lots of love your way! 2 months ago

Ellen Fox

Ellen Fox

DONATION: $30

2 months ago

Cecilia and Christopher poggi

Cecilia and Christopher poggi

DONATION: $200

With all our love 2 months ago

Emily and Jason Poague

Emily and Jason Poague

2 months ago

Donald Robke & Wendy Eilbacher

Donald Robke & Wendy Eilbacher

DONATION: $25

3 months ago

The Fryers

The Fryers

DONATION: $250

3 months ago