BENEFITING: INTERNATIONAL FOXG1 FOUNDATION
As many know, McKenna was diagnosed with FOXG1 syndrome in 2014. FOXG1 is an extremely rare neurodevelopmental condition as there are only about 300 known cases worldwide. Now that we have a diagnosis we've been able to connect with other FOXG1 families through the International FOXG1 Foundation (IFF). IFF is a 501(c)(3) non-profit foundation, started in 2012 by six families, all of whom have a child affected by FOXG1. Their mission is to provide hope and support to individuals with FOXG1 and their families; to facilitate discussion and fund research within the medical community; and to bring awareness and education to the public.
To date, our generous family and friends donated over $3,000 to support FOXG1 research. We are humbly asking that you consider making a donation (at any level) in McKenna's name to the International FOXG1 Foundation to help fund continued research and support programs that will help FOXG1 children now and in the future. All donations are 100% tax deductible to the extent allowed by law. Please note there is an optional processing fee that you can adjust to zero at your discretion before processing your donation.
Kurt, Kasey, Ryley, and of course - McKenna!