BENEFITING: Massachusetts Down Syndrome Congress
ORGANIZER: Massachusetts Down Syndrome Congress
Here's my story:
When i found out I was pregnant, i was overwhelmed with so many emotions, happy, nervous, scared. (etc). I had an extremely hard pregnancy from the beginning, I had morning sickness from the day I found out, until the day I delivered my bundle of joy, (all worth it)! I went for my first ultrasound at 8 weeks, everything looked perfect, he was the perfect size, strong heartbeat, everything you want to hear when you see your little peanut. After many appointments, I finally got to find out what I was having, (fingers were crossed for a girl, of course)! BUT! Josh and I found out we were having a little boy, thinking i was going to be upset, I was actually very excited, I could finally start shopping around, and buying little stuff here and there for him.
A month later, I asked Josh, if we could get a 3D ultrasound done in Boston, I needed to see my little boy's face, Josh was very hesitant, and told me that it would only be a couple more months until I get to see his face, After days and days of bugging him to get the 3D ultrasound done, i finally made an appointment, without telling him. I made the appoinment for a month later, (hoping i could talk him into it a little bit longer!) he finally caved in, we went for the ultrasound with his sister, and our 2 friends. I couldn't sleep the night before, and i could not sit still the next day on our drive to Boston!!!
We finally got to Goldenview, I went in for my appointment and FINALLY got to see my little baby's face. He was absolutley beautiful, I was so excited to meet him in a few months, and I could finally get some sleep at night knowing a little about him!
I got home from the ultrasound, showed my parents the CD we got of the whole ultrasound, put his teddy bear with his heartbeat next to my bed and went downstairs to grab my phone. as soon as i got my phone i had a missed call from my gynecologist, I listened to the voicemail, and that's when i knew something was wrong. I immediatly called back, and she told me that they saw something on the 3D ultrasound that i had 2 hours previous, and that i had to go in for a level 2 ultrasound the following day. I started to cry, what could be wrong? all of my other ultrasounds looked perfect, maybe there was just a shadow? my mind wandered all night long, i woke up the next morning, Josh and I went to the level 2 ultrasound. Seeing my baby again, looking for SOMETHING that could possibly be wrong. The tech told us to wait a couple minutes until the doctor came in to talk to us. It was the longest wait of my life, seemed like hours.
He finally came in, He seemed nervous, nervous to tell me the news that would change my life forever...
He then proceeded to show us what they found in the 3D ultrasound, it was 2 bubbles. Josh and I had no idea what that meant, He then stopped and told us that these 2 bubbles are usually found in children with DS. My whole entire world stopped. i didn't know what to feel, i was emotionless, i just looked at him and nodded. I had no idea what to do, what to say, how to react.
Everyone wants that perfect pregnancy, a healthy child, no defects, nothing.
The doctor gave us a few minutes by ourselves to talk, he said that I could take a blood test and see if my baby definitely had DS. i was hesitant about it, Did i really want to know? Did it really matter? Josh was amazing throughout the whole thing. He had no care in the world, he was going to love this little boy with everything he had, and there I was, feeling selfish, like I did something to deserve this. I went home that day, wanting nothing to do with anyone or anything. I thought about the blood test for a couple days, no sleep, i had to do it, I needed to know. If he did have Downs, i needed to prepare, and learn more about it..
I went in for the blood test 2 weeks later, they told me it would take 7-14 days for the results to come back, it was the longest 2 weeks of my life, but I got the call... She told me it came back positive and that my child did have it. I started to cry, my mom came down, and started hugging me, telling me that it was okay to feel all of these emotions, at the end of our conversation, I was actually happy, happy to have a little boy that would live life to the absolute fullest, who would love with everything he had.
after a long and difficult couple of months, I went into labor at 41 weeks, i had an emergency c section after 14 hours of labor, My mom went into the room with me because Josh couldnt stand to watch me in pain.
Cayden was finally born! about a half hour after he was born, I finally got to see that amazing little boy, that changed my life forever.
Since he had to be taken away to the NICU right after I saw him, i didn't get to hold him, which was very hard to handle at the time. When i got moved to the room i would be staying in, I went up to go visit him.
He was hooked up to so many wires, tubes everywhere, it was difficult, it was such a long and hard pregnancy, and now I had to deal with all of that stress of him awaiting surgery, not knowing when he would be going home.
3 days later, he went in for his surgery to connect those 2 bubbles. He did amazing. He was such a strong little boy for only being a 3 days old, after all of that, he had to use a feeding tube for a while until his stomach could handle formula. It seemed like forever, But he finally started to take a bottle, since it was his first time feeding by mouth, he had a very hard time with it, He couldn't get the concept of breathing, sucking and swallowing at the same time, so they ended up putting a Gtube in and feeding him that way. 45 LONG days later, on Christmas Eve my little boy got to come home and spend Christmas with us, since then he has done AMAZING. he hasn't had to use his Gtube once, and has been taking more than they thought he would by bottle.
Cayden has changed my life forever, and I would not want him any other way than he is now, He has made me want to change my life around for the better, and to be the happiest person I can be. & that's why I want to raise money, for all these children who have changed the lives of so many parents, and people around them.