Medical help for Illiana, Christian, and Evelyn Wiberg
Organized by: Evelyn Wiberg
EVENT DATE Jul 12, 2015
My teenagers and I have several rare disorders that can be life threatening. They are Chiari Malformation (CM), Ehler's-Danlos Syndrome (EDS), Syringomyelia (SM), Idiopathic Thrombocytopenia Pupura (ITP), and Idiopathic Intracranial Hypertension (IIH). Every doctor I see goes like this; the first appointment they say they'll do the surgeries, I need to be stable. The appointment to schedule the surgeries I am told there's nothing that can be done. Both of my children, ages 15 and 16 years old, have been going through the same thing with the doctors they've seen as well. Illiana, my 15 year old daughter, is losing the ability to care for herself because she is getting more weakness in her legs a lot quicker and is also losing her vision. Christian, my 16 year old son, is also losing his vision and is also having to depend on people more but he's fighting it every step of the way. Both of my children have inherited all of these incurable illnesses from me. I have found a pediatric neurologist for Christian and Illiana as well as a neurologist for myself. The appointment for the children is on July 13, 2015 at Pediatric Neurology with Dr. Taft in Greenville, SC. I have sent an email to Dr. Rekate in New York to see if he will take our cases as well because I have been told he likes the hard cases no one else wants. I am also in the process of trying to find a complex medical team program in or around Knoxville, TN. I will update this page as events unfold. The cost for the Skype interview is $300, the rest of the money raised is for gas, lodging, and food. I also have a Facebook page set up for people that want to follow our journey can; on the page are pictures of items that are handmade for sale. Here is the link to that page: https://m.facebook.com/profile.php?id=873588685994631
Thank you in advance for helping me save my children and myself from needless suffering.