EVENT DATE: Nov 06, 2016
This year we are running our first marathon in the city that has become home, NYC. As many of you that will be on this page are aware of, Megan and many members of her family have a rare skin disease called Epidermolysis bullosa simplex (EB simplex). EB simplex is the least severe form of a group of genetic conditions called epidermolysis bullosa that cause the skin to be very fragile and to blister easily. Epidermolysis bullosa is relatively unknown and the full-blown EB disease is absolutely devastating.
Megan is very lucky that she has lived a normal and active life in spite of her condition. We don't often ask for donations from friends and family but this is very dear to our hearts and ask that you consider giving just a little to aid in the research into finding a cure for all forms of EB. You can find out more about dEBra of America, the organization we are fundraising for, at http://www.debra.org/.
Although training for this marathon has been a pretty painful process for both of us, Megan and Alastair are excited to work through it and (hopefully!) complete the race this upcoming November.