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Dee Robillard's Fundraiser:

Melanie's 5km walk to raise awareness and funding for Kleefstra Syndrome research.

Dee's Photo
Dee's Photo
Dee Robillard

THE STORY:

We are happy to be part of a very special event in support of raising awareness and funds for research for those diagnosed with Kleefstra Syndrome (KS). Please join Melanie and our family along with our dear friends for the First Annual Kleefstra Syndrome Walk and Roll charity event. We will be joined “virtually” by our extended Kleefstra Family from around the world who will be hosting events from Sept 17-25th. GeneSpark.org is an international non-profit foundation focused on the advancement of research and treatments for reversible Intellectual Disability (ID) disorders, specifically those arising from a gene deletion or mutation such as KS. This past June we attended a conference in Boston where we met with scientists and KS families from around the world to discuss the diverse spectrum of on-going challenges and treatment approaches for those diagnosed with Kleefstra. Dr. Kleefstra herself attended and Mel was thrilled to meet her! Shortly after this meeting, out of the blue Mel asked me if Dr Kleefstra would be able to “fix her”…. I was startled and saddened to hear these words come out of her mouth and told her she was perfect just the way she was! We have been through many phases/challenges with our amazing Melanie. The reality is that she has more profound abilities and intolerances than can be described. Melanie has taught us to accept, appreciate and love the things that really matter.. (like pizza and ice cream  ) Knowing that there could be tangible treatments in the future gives all current and future KS kids/adults something to strive towards. How can you help?.... • Make a donation and share this page on Facebook • Help raise awareness and wear purple on Sept 17th KS Awareness Day • Participate in the event and invite family/friends to join along Everyone is welcome and we would be honored to have you participate with us on Saturday Sept. 17th at Bronte Harbour 11:00 am ( Lakeshore and West River Street-just west of Bronte Rd)

 

DONATE

To This Fundraiser

$2,515

MONEY RAISED
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  • Yvonne Thomas

    $50

  • Hilmer & Natashia

    $250

  • Barbara Kurtz

    $25

  • Susan E. Rae

    $50

  • Louise Maslen

    $25

  • The Smith Family

    $100

  • Francie Bujna

    $100

  • Alan and Lisa Ferguson

    $50

  • Keith & Joanne

    $50

  • Jim and Suzie Findlay

    $100

  • Darlene O'Connor

    $50

  • Stubbingtons

    $50

  • Coach Katie

     

  • Tante Lou and Uncle Gary

    $50

  • Lucia and Ada

    $100

  • Tante Annette & Uncle Gerry

    $50

  • Patty & David

    $50

  • Dave and Teresa Thornberry

    $50

  • Anonymous

     

  • The Mitchell's

    $100

  • Tant shy, Uncle Mark and Meme

    $75

  • Sheila Thornberry

    $20

  • The McGuigan Family

    $100

  • Kim Macdonald

    $25

  • Farra Farrauto & Family

    $25

  • Marilyn McGrory

    $50

  • Cathy and Dave

    $50

  • Mary Vickers

    $20

  • Ross and Pam Dorion

    $50

  • Anonymous

    $50

  • Tracy

    $50

  • Brenda and Paul

    $50

  • Anonymous

     

  • Beatrix Morrallee

    $100

  • The Barth's

    $50

  • Janice and Marlee McVey

    $100

  • The Alonso Crew

    $100

  • Pasquale Solimine

    $25

  • The Zs

     

  • Sheri & Aaron Kapasi

    $50

  • Noreen Donnell

     

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168% Raised of $1,500 Goal

Fundraise for this Campaign

The Team: $2,515 TOTAL RAISED SO FAR

JOIN THE TEAM

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Donor Comments

Noreen Donnell

Noreen Donnell

2 years ago

Sheri & Aaron Kapasi

Sheri & Aaron Kapasi

DONATION: $50

We love you Melanie!!! 2 years ago

The Zs

The Zs

We Luv ya Mel 2 years ago

Pasquale Solimine

Pasquale Solimine

DONATION: $25

2 years ago

The Alonso Crew

The Alonso Crew

DONATION: $100

<3 2 years ago

Janice and Marlee McVey

Janice and Marlee McVey

DONATION: $100

2 years ago

The Barth's

The Barth's

DONATION: $50

2 years ago

Beatrix Morrallee

Beatrix Morrallee

DONATION: $100

For my fabulous friend Melanie! 2 years ago

Anonymous

ANONYMOUS

2 years ago

Brenda and Paul

Brenda and Paul

DONATION: $50

2 years ago