After a 20 year battle with the pain associated with rheumatiod arthritis and a total hip replacement were overcome I decided to run a half marathon. I started training in 2011 and completed my race January 2012. I ran the 2012 Walt Disney World Half Marathon. I had no idea that this little bucket list item would change my life.
On my my way home from Florida I was asked by a TSA agent which charity I ran for. I had no answer for her. She didn't know that she had just planted a seed that would change my life. You see, the little boy with glasses that you see in my photo is my youngest son Parker. Parker has an extremely rare form of Muscular Dystrophy called Ullrich Congenital Muscular Dystrophy. While we're blessed that his case is curretnly presenting itself in a very mild way, we don't know what the future holds. Most kids with UCMD struggle to walk, if they are able to, many require the use of a power chair. Many kids with UCMD also require breathing assistance. There are lots of kids that are fighting a much more difficult battle than Parker is right now and they need our help!
Since we ourselves have been the recipeints of the MDA's generosity it seemed like a no brainer that we raise money for them. After all, I had planned to keep running, why not run for a reason? So, I got to work with the MDA and runDisney and l began the proces of establishing a chairty running team, that now is a fully IRS approved 501(c)3 non-profit organization.
Please join us in our fight to find a cure for UCMD. All four of us are running the 2015 TInker Bell Half Marathon Weekend. Parker is run/walking the 5k, Jackson is running the 10k, Dan is running the 10k. I will be running in every event, the 5k, 10k and Half Marathon that weekend.
So, here we are again, asking for your support. I cannot even express to you all how thankful we are for the continued dedication you all have given our team. With your help we are making a difference! None of this would be possible without your cheers, your prayers and your generous donations. We aren't afraid to work for it either, so if you want to put us to work for a donation we are more than happy to do that! Any donation is appreciated.
Thank you, from the bottom of my heart.
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