Melissa Wells via Crowdrise
October 14, 2011
BENEFITING: The Histiocytosis Association of America, Inc.
EVENT DATE: Oct 30, 2011
HOURS PLEDGED: 10
I run for lots of reason. Most days that I hit the ground running I do it simply because I enjoy it. That simple joy might get me out there, but in all those moments I am alone on the road, I have a lot of time to think about the people and things most important to me. Being a healthy role model is one of those things, especially to my children. Hearing Jackson tell perfect strangers that he "ran 6 miles today" fills me with pride and laughter.
Since the very day I learned of our little neighbor Maya Gordon and her battle with the rare disease HLH (Hemophagocytic lymphohistiocytosis) I have wanted to do something to help. We have attended benefits and made donations to their family but now I want to donate to the organization responsible for raising money for research of this terrible disease with the goal of finding a cure. Maya is only 3 months younger than Jackson. Jackson can look straight out our living room window across the street and into their living room. He calls Maya his girlfriend. She has lived a very different life than him. She is a warrior in every sense of the word and has survived chemotherapy, a bone marrow transplant in April 2010, endless medications, reactions, needles, and many many stays and trips to Children's Hospital of Philadelphia.
Many parents take for granted the health of their child; many people in general take their own health for granted. With every mile I run I feel that I remind myself more and more how blessed I am to be healthy and able. I want to run for Maya and her family because she knows firsthand that she can't take her own health for granted. Maya and her family continue to fight this awful and little known disease of HLH. Every dollar that I could raise on behalf of Maya for the Histiocytosis Association of America could mean more research, greater awareness, and a better chance that a cure can be found for HLH.
Will you consider pledging a monetary donation for my marathon in honor of Maya? Maybe a dollar for each of the 26 miles I will run? Maybe $10 is all you can afford . . . that is still $10 towards making a difference that could save lives. Even if you can't donate I thank you for taking the time to read about Maya's story.
Please visit the below links to learn more about HLH and the Histiocytosis Association: