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Lindsey Glorioso's Fundraiser:

Our Little Angel Mia Nalani

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BENEFITING: TRISOMY 18 SUPPORT INC

EVENT DATE: Jun 25, 2011

HOURS PLEDGED: 24

Lindsey Glorioso

THE STORY:

Mia's Story

"On September 5th, 2006 my daughter Mia Nalani was born. Her birth weight was 5.9 lbs. and she measured less than 16”," says Mia's mom, Lilly. "I can still remember her faint whimper as the doctor’s worked on her for a few minutes after birth. Working in labor and delivery for a few years I knew something was not right but soon after the doctors worked on Mia, she was placed on my chest and I was told that everything was fine…or so they thought. Sad to say, our Mia was diagnosed with Trisomy 18, also known as Edward’s Syndrome. We were sent home with hospice arrangements since the grim prognosis was that she would not be living past two weeks.

"Four and half years later, our Mia is still here. She has been hospitalized four times. The most recent admission revealed that her heart condition has shifted from mild to severe pulmonary hypertension and it is very likely that she will slowly began to digress as her heart begins to wear down. Mia is too frail to survive surgery so the best thing we can do for her is pray and hope she is with us a little longer."

We want to raise $10,000! $5,000 will go to Mia for medical expenses and an account for her memorial and $5,000 will go to the Trisomy 18 Foundation.


HOW YOU CAN GET INVOLVED

DONATE! If you are in the Cleveland, OH area, you can donate by going to any Fifth-Third Bank and making a donation to the Benefit Account for Mia Nalany. You can also contact mianalanyfundraiser@yahoo.com for information on our fundraiser dinner scheduled for June 25, 2011  If you are outside of Cleveland, please contact us at mianalanyfundraiser@yahoo.com for more information on how you can help Mia and her family!

You can donate by mailing a check for Mia Nalani to:

Fifth Third Bank, 4653 Tiedman Rd., Brooklyn, Ohio 44144

 

PARTICIPATE! Join our team here on Crowdrise and help us spread the word! If you're in the Cleveland area and would like to pass out flyers or pamphlets, get in touch with us via Facebook "Support Fundraiser for Mia Nalani" or on Twitter as "mianalanifund".

SPREAD THE WORD! Please join our team here on Crowdrise and help us spread the word about Mia and about Trisomy 18! It's so easy and yet it could do a world of good! You can also join us on Facebook!

What does Mia’s future look like?
Currently, Mia is doing better considering her prognosis. She is able to eat without a feeding tube and is breathing without the help of an oxygen machine. Mia was getting physical and occupational therapy in the last months through school which helped improve her head control (she is able to hold her head on her own). Unfortunately, it is unknown how much longer she will be with us. Her recent change with her heart tells us that her heart is slowly deteriorating. More than likely she will begin to show less activity and begin to slow down as her energy decreases. In the meantime we will enjoy the time that we have with her.

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“Our Little Angel Mia Nalani” is not an official 501c3 and, thus, cannot accept donations via Crowdrise. We are using this website solely as a means to track our offline donations and generate maximum exposure for such a worthy cause.  

If you want to donate, feel free to contact us at mianalanyfundraiser@ yahoo.com.

You can also find us on Facebook under "Support Fundraiser for Mia Nalani" or on Twitter at "mianalanifund".

DONATE

To This Fundraiser

$4,858

MONEY RAISED
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  • Lou & Nancy Glorioso

    $25

  • Oasis of Blessing Church

    $522

  • Northern Ohio wRECk Roller Derby

    $100

  • Offline Donation

    $20

  • Miriam Cuevas

    $21

  • Raymon King-Redding

    $20

  • Jeff Markle

    $20

  • Janet Burke

    $20

  • Anonymous

    $5

  • Debbie Wolf

    $40

  • Katherine Miller

    $20

  • Anonymous

    $5

  • Patria Cabrera

    $20

  • Lydia Crawford

    $5

  • Cheryl Sanders

    $20

  • Mercy McCloskey

    $5

  • Laura Stansbury

    $25

  • Anonymous

    $100

  • Heather Ciriaco

    $20

  • Felix Cabrera

    $23

  • Miriam Cuevas

    $5

  • Charles Carr

    $20

  • Terri Love

    $25

  • Lindsey Glorioso

    $20

  • Jennifer Fuller

    $20

  • Robyn Rogers

    $3

  • Audra Ziedonis

    $5

  • Wanda Lake

    $5

  • Anonymous

    $10

  • Anonymous

    $20

  • Anonymous

    $1

  • Alicia Burton

    $25

  • Alison Loudermilk

    $20

  • Allison

    $5

  • AnaAlicia

    $1

  • Angela Phelps

    $5

  • Ashley Savoy

    $1

  • Ben Gleason

    $3

  • Dorian Barnes

    $5

  • Dana

    $20

  • Bernice Dominick

    $20

  • Briana Bertolone

    $2

  • Dana Grellinger

    $20

  • Eli

    $20

  • EricaMills

    $5

  • Erin Kufel

    $20

  • Fred

    $5

  • Georgene Upshaw

    $5

  • Henry Costas

    $5

  • Jackie

    $2

  • Jayson

    $1

  • Jennifer

    $10

  • Jillian

    $5

  • Jimmy B

    $20

  • Joanne C

    $1

  • John

    $5

  • Julianne Bergen

    $20

  • Karmen Brown

    $20

  • Kelly Langan

    $5

  • Kristy Gore

    $2

  • LaCretia Colvin

    $20

  • Margarita Hernandez

    $10

  • Maria Guastella

    $105

  • Melanie Church

    $1

  • Monica Adams

    $5

  • Nataia Ratliff

    $5

  • Nnabike

    $2

  • Rachel

    $1

  • Ray King-Redding

    $20

  • Renee Hein

    $1

  • Sandia Lewis

    $5

  • Sarah Meadema

    $5

  • Sarah Roder

    $5

  • Simone

    $5

  • Smitha

    $2

  • Toni Stacho

    $20

  • Vickie Terifaj

    $5

  • Victoria Samera

    $1

  • Anonymous

    $183

  • Anonymous

    $82

  • HCM Fundraiser

    $48

  • Michael J. Baird

    $200

  • Fundraiser Dinner

    $2,382

  • Law Office of Jesse M Schmidt

    $50

  • Anonymous

    $30

  • Ice Cream Social

    $88

  • Ice Cream Social

    $87

  • Anonymous

    $42

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49% Raised of $10,000 Goal

Fundraise for this Campaign

The Team: $4,858 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Cinnette Diaz

Amount Raised

$3,133

Fundraiser Title

Lindsey Glorioso

Amount Raised

$1,236

 

12% Raised of $10,000 Goal

Fundraiser Title

kevin ansberry

Amount Raised

$489

Fundraiser Title

Jose Garcia

Amount Raised

$0

Donor Comments

Anonymous

Anonymous

DONATION: $42

6 years ago

Ice Cream Social

Ice Cream Social

DONATION: $87

6 years ago

Ice Cream Social

Ice Cream Social

DONATION: $88

6 years ago

Anonymous

Anonymous

DONATION: $30

6 years ago

Fundraiser Dinner

Fundraiser Dinner

DONATION: $2,382

6 years ago

Law Office of Jesse M Schmidt

Law Office of Jesse M Schmidt

DONATION: $50

6 years ago

Michael J. Baird

Michael J. Baird

DONATION: $200

6 years ago

HCM Fundraiser

HCM Fundraiser

DONATION: $48

6 years ago

Anonymous

Anonymous

DONATION: $82

6 years ago

Anonymous

Anonymous

DONATION: $183

Group of anonymous donations from one of our fundraisers 6 years ago