BENEFITING: Dysautonomia International
EVENT DATE: Jan 15, 2017
As many of you know, Melaney was diagnosed with Postural Orthostatic Tachycardia Syndrome in March of 2016. After being in the hospital for 25 days it was disheartening to get a diagnosis of an incurable chronic illness. 1-3 million Americans have POTS, and many go diagnosed. It takes an average of 5 years to get a diagnosis. POTS typically affects female young adults who are in the prime of their lives. And as in Melaney's case, it can totally turn their world upside down. This form of Dysautonomia is quite disableing as it affects pretty much every part of the body. POTS can vary from mild to severe, however Melaney has a very severe case that is caused by an autoimmune disorder attacking her autonomic nervous system. Most POTS patients, like Melaney, have at least 3-5 diagnoses including of various incurable illnesses, if not more! This means taking many medications and forms of treatment per day. For Melaney, this means IV hydration, IVIG infusions, physical and occupational therapy, plus nearly 30 medications daily. Many warriors of POTS, like Melaney, are frequently in the ER or admitted to the hospital for various reasons. This becomes overwhelming and is another reason we need to fund research to find a cure! Most people have never heard of POTS and there is still a lot of research to be done. Michelle (Melaney's oldest sister) ran the PF Changs Full Marathon Phoenix in January 2017 in honor of Melaney and raised funds for Dysautonomia (POTS) research. We are continuing to fundraise and work with organizations to collect funds for POTS research. Please donate, even if it is $5 because every dollar will bring us one step closer to our goal of finding a cure for POTS! Feel free to give a check or cash to Melaney, Michelle, or Annette Niemiec if that is easier.