I will be running the Vermont City Marathon on May 29th as a virtual race for Miles for Migraine. I am fundraising in support of Katie and others who live with Chronic Migraine.
Miles for Migraine donates a portion of their funds each year to the Alliance for Headache Disorders Advocacy (AHDA) an organization that Katie is passionationaly involved in. Since 2007, AHDA has advocated consistently for increased recognition of, and more equitable federal policies towards, Americans with disabling headache disorders. These advocacy efforts have been expressed through nine annual Headache on the Hill (HOH) congressional fly-in events in Washington, DC, as well as multiple other activities throughout the years.
MILES FOR MIGRAINE wrote -
Why Participate? In addition to pain, sickness and disability that is daily for many, migraine carries a severe burden of discrimination and negative feeling from many members of community. This is called stigma. History shows that diseases that are stigmatized, like HIV, breast cancer, and autism, can only change in the public’s mind when the patients and their families come together in community action asking for recognition. Diseases where the patients do not stand up for themselves remain badly stigmatized, and they do not get the research or treatments needed to effectively treat their condition. This is even true if doctors speak up for the disease. Unless patients and their families assume this effort, migraine cannot be re-framed. Patients with migraine very often do not have an opportunity to stand up for their disease, and thus themselves. They desperately need an opportunity to do something positive about the condition that they have. Basic psychology teaches us that if you do something positive in a group, you feel better about yourself. They also need a way to encourage their families and friends to participate for migraine, because doing something for someone else’s disease transforms attitudes toward that disease, and gives them an opportunity to learn about the scope of migraine. Migraine is the 3rd most common disease in the world, yet gets the least amount of research and funding. Migraine patients deserve research in order to find new treatments, and so that headache researchers and clinical specialists can be trained. Miles for Migraine does these things. And it does it by bringing patients together in community, while doing something that at the same time is good for your health. So please, WALK, RUN, VOLUNTEER or DONATE to MilesforMigraine.org
Sincerely, Shirley Kessel, President Miles for Migraine