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Christy Wright's Fundraiser:

Miles to Go: Run to Cure Pots

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December 03, 2017

Exciting news! We received 30 POTS research grant applications in response to our recent Request for Proposals, seeking over $2M in grants! We  See more
Christy Wright

THE STORY:

In January of 2017, we thought my 14 year old son caught the flu bug. But he never got better, and he couldn't get out of bed, and no matter how many doctors he saw, no one could tell us what was wrong. We were accepted at the Mayo Clinic in March and he was diagnosed with POTS (Postural Orthostatic Tachycardia Syndrome), a type of Dysautonomia. Slowly he is learning to manage his illness. He is a freshman in high school this year and is on the tennis team. He is able to attend school full time again. But he still doesn't feel good, and everyday is still a struggle.

Imagine one morning waking up feeling like you have the flu, but you never recover. You lose your ability to return to your daily life – socializing with friends, being able to go to school, even taking a shower on your own. Then imagine being told by a doctor that this will be a lifelong illness with no effective treatments and no cure. These are common realities of those who suffer from DYSAUTONOMIA, a group of neurological disorders that impact the autonomic nervous system, affecting approximately 70 million people worldwide. Even though dysautonomia is fairly common, it can take many years for patients to get diagnosed due to a lack of awareness amongst the public and within the medical profession. With your help, we can improve the lives of people living with dysautonomia and strive for a cure!

I am training to run the Little Rock Marathon on 3/4/18. Last winter I ran to cope with the stress of struggling to find a diagnosis for my son's mystery illness. This year I run to raise awareness about Dysautonomia and raise funds for Dysautonomia International's research grant program.

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To This Fundraiser

$945

MONEY RAISED
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  • Michele Miller

    $100

  • Angel Hill

    $50

  • Maranda Dennis

    $50

  • Patty Wiese

    $5

  • Emily Hiller

    $50

  • Kristy Allen

    $50

  • Nikki Durham Privitera

    $50

  • Angela Reinstein

    $50

  • Ken Wright Jr

    $100

  • Amy Baca

    $50

  • Connie Benedict

    $20

  • Marilyn Mlnarik

    $50

  • Patricia Williams

    $50

  • Andy Stewart

    $50

  • Kim Lupardus

    $20

  • Debbie Smith

    $50

  • Anonymous

    $100

  • Greg & Candy Brasel

    $50

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19% Raised of $5,000 Goal

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The Team: $945 TOTAL RAISED SO FAR

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Donor Comments

Greg & Candy Brasel

Greg & Candy Brasel

DONATION: $50

We hope there is a discovery that will eradicate this disease. 5 months ago

Anonymous

Anonymous

DONATION: $100

6 months ago

Debbie Smith

Debbie Smith

DONATION: $50

6 months ago

Kim Lupardus

Kim Lupardus

DONATION: $20

6 months ago

Andy Stewart

Andy Stewart

DONATION: $50

6 months ago

Patricia Williams

Patricia Williams

DONATION: $50

6 months ago

Marilyn Mlnarik

Marilyn Mlnarik

DONATION: $50

6 months ago

Connie Benedict

Connie Benedict

DONATION: $20

6 months ago

Amy Baca

Amy Baca

DONATION: $50

6 months ago

Ken Wright Jr

Ken Wright Jr

DONATION: $100

6 months ago