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Alicia Halbert's Fundraiser:

#miles4Rory

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Alicia Halbert

THE STORY:

THE STORY: All donations made to #miles4Rory are tax deductible and benefit the Autoimmune Encephalitis Alliance, a 501(c)(3) organization whose mission is to find a cure for autoimmune encephalitis through multi-disciplinary, collaborative research and clinical care. ********************************************************** Rory first experienced a loss of balance and motor coordination at 2.5 years old and for the next few years, she developed a series of seemingly unrelated symptoms that worried her parents and puzzled doctors. Then, when she was 6 years old —at a time when other children her age were wrapping up first grade and looking forward to summer vacation— her symptoms intensified to crisis levels. For a period of six weeks, she experienced decreased consciousness, lost the ability to walk, was unable to speak coherently, and stopped eating and sleeping. She had hemispatial neglect (which meant one side of her brain was not working correctly), autonomic dysfunction, hallucinations and finally — and perhaps thankfully — a complete loss of memory of this frightening time. Local doctors were at a loss to explain Rory’s symptoms, so her parents began an exhaustive search for medical answers. Over the next two years, Rory missed nearly 10 months of school before being seen by a team of doctors at Duke Children’s Hospital, who diagnosed Rory with Autoimmune Encephalitis (AE). Because Duke is one of the few pediatric centers treating this disease the family travels from their home in Indiana to North Carolina. Still, two years after Rory's diagnosis, the family cannot get medical care in their home state of Indiana. Please help us change that. Join Rory’s team and help us raise awareness for AE!

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To This Fundraiser

$2,185

MONEY RAISED
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  • JDS

    $100

  • The Piko Kids

     

  • Kathleen O'Leary

    $100

  • Joann Sterzik

    $25

  • Sara and Erik Flesch

    $50

  • Meg Purnsley

    $25

  • Janice Huber

    $25

  • Jake, Tessa, Brayden and Sydney Hunt

    $50

  • Guy and Joan Tanner

    $25

  • Kristen

    $25

  • John Garceau

    $50

  • Sherry and John Halbert

    $50

  • Tom and Amy Perrin

    $50

  • Will Simmons

    $100

  • Tom & Sue O'Leary

    $250

  • Cary Curry

    $100

  • Laura Haule

    $50

  • Bernie and Blair Garceau

     

  • Indy Aquatic Masters

     

  • Tony and Andrea

     

  • Liz Centanni

    $10

  • Meghan Stromberg

     

  • Pat & Marti O'Leary

    $100

  • Mike and Nina

    $100

  • Cheryl Gettelfinger

     

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87% Raised of$2,500 Goal

Fundraise for this Campaign

The Team: $2,185 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Alicia Halbert

Amount Raised

$2,085

 

83% Raised of$2,500 Goal

Fundraiser Title

Pat & Marti O'Leary

Amount Raised

$100

Donor Comments

Cheryl Gettelfinger

Cheryl Gettelfinger

3 years ago

Mike and Nina

Mike and Nina

DONATION: $100

3 years ago

Pat & Marti O'Leary

Pat & Marti O'Leary

DONATION: $100

Miles 4 Rory 3 years ago

Meghan Stromberg

Meghan Stromberg

3 years ago

Liz Centanni

Liz Centanni

DONATION: $10

3 years ago

Tony and Andrea

Tony and Andrea

3 years ago

Indy Aquatic Masters

Indy Aquatic Masters

3 years ago

Bernie and Blair Garceau

Bernie and Blair Garceau

3 years ago

Laura Haule

Laura Haule

DONATION: $50

3 years ago

Cary Curry

Cary Curry

DONATION: $100

3 years ago