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Alicia Halbert's Fundraiser:

#Miles4Rory

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Alicia Halbert

THE STORY:

All donations made to #miles4Rory are tax deductible and benefit the Autoimmune Encephalitis Alliance, a 501(c)(3) organization whose mission is to find a cure for autoimmune encephalitis through multi-disciplinary, collaborative research and clinical care. ********************************************************** Rory first experienced a loss of balance and motor coordination at 2.5 years old and for the next few years, she developed a series of seemingly unrelated symptoms that worried her parents and puzzled doctors. Then, when she was 6 years old —at a time when other children her age were wrapping up first grade and looking forward to summer vacation— her symptoms intensified to crisis levels. For a period of six weeks, she experienced decreased consciousness, lost the ability to walk, was unable to speak coherently, and stopped eating and sleeping. She had hemispatial neglect (which meant one side of her brain was not working correctly), autonomic dysfunction, hallucinations and finally — and perhaps thankfully — a complete loss of memory of this frightening time. Local doctors were at a loss to explain Rory’s symptoms, so her parents began an exhaustive search for medical answers. Over the next two years, Rory missed nearly 10 months of school before being seen by a team of doctors at Duke Children’s Hospital, who diagnosed Rory with Autoimmune Encephalitis (AE). Because Duke is one of the few pediatric centers treating this disease the family travels from their home in Indiana to North Carolina. Still, three years after Rory's diagnosis, the family cannot get medical care in their home state of Indiana. Please help us change that. Join Rory’s team and help us raise awareness for AE!

DONATE

To This Fundraiser

$2,625

MONEY RAISED
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  • Anna Radford

    $50

  • Kathleen O'Leary

    $100

  • SC

    $25

  • Kristi Urquhart

     

  • The Piko Kids

    $50

  • Cindy Dickerson Masarik

    $25

  • Jim z

    $100

  • Anonymous

    $250

  • Maryanne Fox

    $100

  • Sean, Sadie and Angelique Power

    $25

  • Jessica Westhoff

    $50

  • Flanagan Family

    $50

  • Ron and Rena Elberger

    $250

  • The Allen's Gang

    $25

  • Anonymous

    $100

  • Kara McMahon

    $50

  • Pat&Marti O'Learu

     

  • Michelle Jensen

     

  • Tom & Sue O'Leary

    $250

  • Cary Curry

    $100

  • Curry Auto Center

    $100

  • Cathy Marschall

    $100

  • Amy and Ryan Claus

    $100

  • Katie Paulson

    $50

  • Cox Family

    $50

  • Jake, Tessa, Brayden and Sydney

    $50

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105% Raised of $2,500 Goal

Fundraise for this Campaign

The Team: $2,625 TOTAL RAISED SO FAR

JOIN THE TEAM

Want to help Fundraise or Volunteer for this amazing Fundraiser? Join the Team

Donor Comments

Jake, Tessa, Brayden and Sydney

Jake, Tessa, Brayden and Sydney

DONATION: $50

#teamrory 7 months ago

Cox Family

Cox Family

DONATION: $50

Hooray Rory! 7 months ago

Katie Paulson

Katie Paulson

DONATION: $50

Go Rory! 8 months ago

Amy and Ryan Claus

Amy and Ryan Claus

DONATION: $100

8 months ago

Cathy Marschall

Cathy Marschall

DONATION: $100

8 months ago

Curry Auto Center

Curry Auto Center

DONATION: $100

Go Team Rory! 8 months ago

Cary Curry

Cary Curry

DONATION: $100

Go RORY!! 8 months ago

Tom & Sue O'Leary

Tom & Sue O'Leary

DONATION: $250

8 months ago

Michelle Jensen

Michelle Jensen

8 months ago

Pat&Marti O'Learu

Pat&Marti O'Learu

Luv2Rory & Her Family 8 months ago