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Lindsey and Leo Rushton's Fundraiser:

Mind Over Miles to Cure CMD: Part 1--Rock 'n' Roll Philadelphia 5k

Lindsey and Leo's Photo
Lindsey and Leo's Photo

BENEFITING: CURE CMD

EVENT DATE: Sep 20, 2014

Lindsey and Leo Rushton

THE STORY:

On Sept. 20th, 2014 my husband and I will be running/wheelchair-propelling in the Rock ‘n’ Roll Philadelphia 5k for a non-profit organization called Cure CMD, whose mission is to develop treatments, and eventually a cure for CMD.

I’m Lindsey, I’m 25 years old, my son Leonidas is 2.5 years old, and we both have a rare degenerative muscle disease called congenital muscular dystrophy (CMD).

We are missing collagen VI, and without it, our muscle cells become weaker and die almost as fast as they are replaced. If a treatment can be found, our son will never lose the ability to walk, his spine will never severely curve due to weak muscles, he will never have to get a 15 level spinal fusion, his breathing will not be affected, his body won’t develop painful and debilitating contractures--all of which has happened to me. Other people have even more severe forms of CMD, and many times it’s fatal for them.

Fortunately, there are some promising therapies by world-renowned researchers working with Cure CMD. Unfortunately, because CMD is so rare, these therapies have hit many roadblocks due to lack of funding.

Unless these drugs are funded, there is no cure, no treatments. I’ve had to live my whole life with this disease, and we are running so that Leonidas and all others who have CMD will not have to live the rest of their lives with this disease.

The Rock ‘n’ Roll Philadelphia 5k is our first step. If we meet our goal of $10,000, we will then run the following races, as long as we continue meeting our goals:

10K to raise $25,000
Half marathon to raise $50,000
Full Marathon to raise $100,000

100% of proceeds raised for Cure CMD will go directly to research for these treatments.

Please follow us on this journey. I will use what little strength I have to use my feet to propel my wheelchair forward and my husband will push me while running. With your help, we will finish these races, and provide funding so that these promising treatments can move forward.

Thank you so much for supporting us as we set out to achieve this goal, for sharing our page, and for your contributions; it all truly makes a difference!

You can go to CureCMD.org to learn more about this disease.

DONATE

To This Fundraiser

$1,330

MONEY RAISED
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  • Sandy Rushton

     

  • Lexi Jelepis

     

  • Beverly Johnson

     

  • Kelly Johnson

     

  • Kelly Johnson

     

  • Marylyn Kunz

     

  • Amy Rau

     

  • Ben and Hollie Moffat

     

  • Anonymous

     

  • Stansfields

     

  • Darrel and LeAnn Rushton

     

  • Uncle Mike, Aunt Margie, Aunt Kelly, Grandma Barbara and Mom

     

  • Uncle Mike, Aunt Margie, Aunt Kelly, Grandma Barbara, and Theresa

     

  • Uncle Jerry and Aunt Cara

     

  • Uncle Jerry and Aunt Cara

     

  • The Gilchrist family

     

  • Katie and Nathan

     

  • Anonymous

     

  • Ben & Jerry's Ice Cream

     

  • Anonymous

     

  • Lauren & Andy Corriveau

     

  • Anonymous

     

  • Laura Rice

     

  • The Young Family

     

  • Jennifer Soutos

     

  • Jim and Lisa

     

  • David Kerley

     

  • Anonymous

     

  • Anonymous

     

  • Bev, Tom, Liz and Cate Jelepis

     

  • The Bloomfield Family

     

  • Anonymous

     

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13% Raised of $10,000 Goal

Fundraise for this Campaign

The Team: $1,330 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Lindsey and Leo Rushton

Amount Raised

$1,005

 

10% Raised of $10,000 Goal

Fundraiser Title

Brian Rushton

Amount Raised

$280

Fundraiser Title

Sandy Rushton

Amount Raised

$45

Fundraiser Title

Karl Nordgren

Amount Raised

$0

Donor Comments

Anonymous

ANONYMOUS

4 years ago

The Bloomfield Family

The Bloomfield Family

In honor of Lindsey and Leo 4 years ago

Bev, Tom, Liz and Cate Jelepis

Bev, Tom, Liz and Cate Jelepis

4 years ago

Anonymous

ANONYMOUS

Hey Lindsey Lou!! You should be very proud of what you are doing. Keep t up &we; love seeing all your pictures on facebook. I will share a little saying that I remember during my day{ It is not what God gives us, it is how we handle it. Good Luck Louie!! Love, Bev, Tom, Liz & Cate 4 years ago

Anonymous

ANONYMOUS

4 years ago

David Kerley

David Kerley

For my awesome sister and inspiring nephew! Love you guys, best of luck! 4 years ago

Jim and Lisa

Jim and Lisa

4 years ago

Jennifer Soutos

Jennifer Soutos

In memory of Alexi Soutos 4 years ago

The Young Family

The Young Family

4 years ago

Laura Rice

Laura Rice

For you Lindsey your precise son Leonidas and to everyone in need. Love ya'll, 4 years ago