BENEFITING: Moebius Syndrome Foundation
In July of 2016, the Moebius Syndrome Foundation will hold it's bi-annual conference in Los Angeles. I will be there along with hundreds of other families from around the world. For many, this is the only opportunity they have of meeting face to face with other people with Moebius.
Moebius is an extremely rare condition that causes facial paralysis and other physical abnormalities. My 10-year-old son Willem was born with Moebius and we attended our first conference when he was two years old. We met other parents, children and adults with this condition. We made lifelong friends who gave us hope that everything was going to be OK. I want to make sure more families like mine that receive a Moebius diagnosis are able to attend this incredible event. Your donation will help families without financial means join the community. Thank You, Mike Wuebben