BENEFITING: Pulmonary Hypertension Association Inc
EVENT DATE: Oct 08, 2016
On March 29, 2005, after numerous trips to the ER because I was having difficulty breathing and I was extremely exhausted and taking my pulmonary function tests only to be inaccurately told that I had "a bit of asthma", I was diagnosed with pulmonary arterial hypertension secondary to my scleroderma.
Pulmonary hypertension (PH) is an incurable disease. It occurs when the vessels between the heart and the lungs become constricted causing the pulmonary pressures to rise. The right side of the heart tends to fail because it has to work harder to pump the blood through. PH causes death from heart failure. It affects men, women and children.
The purpose of our Pulmonary Hypertension PHun Walk is to raise awareness about pulmonary hypertension. It's also to help raise money for the Pulmonary Hypertension Association.
PHA is an organization that started around a kitchen table in Florida. It has grown from 4 women around that table to become an organization that relies on donations to fund its many programs, including the nation’s largest PH patient and caregiver support group network, lifesaving early diagnosis awareness and education programs, specialty care resources, and research to find ways to prevent and cure PH. Because of the work of PHA the PH community has gone form 0 FDA-approved treatments to 14 for adults. There are currently still no FDA-approved treatments for children.
All proceeds from our walk go to PHA to help them continue the great work that they are doing.
If it is at all possible please come out and join us on October 8. If you can't attend the walk, please consider making a donation.