Morgan's PKU Conference and Medical Foods
Organized by: Erin Doetsch
Morgan was born with a metabolic disorder called PKU. There is NO cure at this time and unfortunately after a long fight with insurance, they will no longer cover the cost of her medical foods as of January. We will continue to fight, but she will need these foods to stay healthy while we fight for her. We also have registration for the PKU Medical Conference in January. This event happens every 2 years. This is the biggest event in the world for those affected with the disorder. The week long event teaches not only Morgan, but her family how to cope with the daily struggle of PKU. Many doctors for all over the world come and discuss wh we re they are with finding a cure. The best thing about being able to have Morgan attend... she can finally be with others who are living with the same rare disorder.