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Joseph Migliozzi's Fundraiser:

MPS Society Fundraiser in memory of Christopher Migliozzi

Joseph's Photo
Joseph's Photo
Joseph's Photo
 

Joseph Migliozzi via Crowdrise
April 20, 2015

6 days to go until the big event. Thank you all for your donations. Training going well and I'm ready...  See more

BENEFITING: National MPS Society, Inc.

EVENT DATE: Apr 26, 2015

Joseph Migliozzi

THE STORY:

In memory of our son Christopher Joseph who passed away from MPS I (Hurlers Syndrome) I am raising money for the MPS Society. His 12th birthday would have been on April 24th of this year.

This year I wanted to do something special for Christopher.  I am participating in the Westfields Sprint Triathlon on April 26th.  It’s a 250 meter swim, 12 mile bike ride and 5k run.  I've done one before and it was a great experience.  I'm not a world class athlete by any means so these smaller events are perfect for me.  My knees and back don't take too much abuse and I don't feel too bad afterwards. Since this is my first fund raiser I'm looking for small donations from any friends or family that can spare a few dollars.  The donations will go to the National MPS Society which is the organization that supported our family through the most horrendous time in our life.

To tell a little of our story, my son Christopher was born on April 24th, 2003.  We knew pretty quickly that something was wrong.  My wife Paige worked tirelessly to find out why he was having hearing issues, a hernia, always fussy, trouble sleeping, constant acid reflux, etc.  It took almost 6 months before he was diagnosed with MPS I (Hurlers Syndrome).  Hurlers Syndrome is a genetic disorder where your body doesn't create a specific enzyme it needs to break down a byproduct created by the body’s cells.  This byproduct builds up and eventually causes loss of mobility, heart and organ problems and skeletal problems.  If untreated the mortality rate is 100% by age 12.  In our case Christopher was treated with the only available treatment which is chemotherapy, a bone marrow transplant and enzyme replacement therapy.  Unfortunately Christopher developed a blood disorder after the transplant and passed away on June 11th, 2004.  Our little fighter only blessed the earth for 15 months.  The treatments and hospital stay lasted from November 2003 until June of 2004 with him in the hospital almost continuous from January to June.  If you would like to read more on Christopher check out our website, www.christopherjoseph.com.

From a fathers perspective I could never put into words what I went through watching my son get sick and then pass away.  The hopelessness and powerless feeling knowing there was nothing I could do to make him better.  No matter how much I tried to find the best doctors, ask the right questions, be with him through every step and still not be able to protect and save him.  It’s a feeling that I can't describe and would never want anyone to have to go through.  Being a father of a child that has past is a lonely group to be in.  There aren't many of us and I'm happy about that.  I wouldn't wish this on my worst enemy.  But for those that are in our small club it’s a shared feeling we all know too well.  Every holiday, birthday, special event has its own heartache that doesn't ever go away, it just dulls over time.  

This small fund raising event is one thing I can do in his memory and power me through the event.  I know he is watching over me and rooting me on when my knees are yelling and back is throbbing.  Go Daddy, you can do it....

DONATE

To This Fundraiser

$4,215

MONEY RAISED
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  • Alex P. Bartholomaus

    $100

  • The VanLahrs

    $50

  • Lagermasini Family

    $100

  • Hop Meeler

    $50

  • Andy & Christine Weedon

    $50

  • Hicks Family

    $50

  • Ann & Joe Migliozzi

    $100

  • Jason Drakopoulos

    $250

  • The Kelly Family

    $100

  • Mark and Stacy Dolfis

    $100

  • Bob and Mary Paget

    $100

  • Karen Meeler Rice

    $100

  • Andy Kalin

    $100

  • Bob Grimmett

    $200

  • Dwane & Johannah Evans

    $100

  • Schettini Family

    $50

  • John and Teresa Schultz

    $150

  • Corey and Julie Peters

    $100

  • Allison Wixted

    $25

  • Brad & Mary Williams

    $100

  • Jason & Galena Seiler

    $100

  • Anonymous

    $25

  • The Maier Family

    $50

  • The Franconeris

    $100

  • Ed Crawford

    $100

  • The Thompson Family

    $100

  • Tom and Mariula Garvin

    $100

  • Collinsworth Family

     

  • Matt Kroll

    $100

  • Shannon and John Marshall

    $50

  • Greg Seiler

    $20

  • Alicia Thoennes

    $50

  • Anonymous

     

  • Anonymous

    $50

  • Kitty & Dan

    $50

  • Mary Hunt

    $20

  • Xcelerate Solutions

    $100

  • Anonymous

    $25

  • Merritt Green

    $100

  • Mark & Melinda Soltys

    $50

  • Andy Lozano

    $100

  • Kristin, Eric, Casey & Sami Robinson

    $50

  • The Oller Family

    $100

  • Meehan Family

     

  • Joseph Mastaler

    $100

  • Conor & Staci O'Neill

    $50

  • Kathi & Vinny Kennedy

    $50

  • Setty - Power

    $100

  • INTEC Group

    $100

  • Molloy Family

    $100

  • The Cassons

    $100

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422% Raised of $1,000 Goal

Fundraise for this Campaign

The Team: $4,215 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Joseph Migliozzi

Amount Raised

$4,165

 

417% Raised of $1,000 Goal

Fundraiser Title

Kathi Green Kennedy

Amount Raised

$50

Donor Comments

The Cassons

The Cassons

DONATION: $100

2 years ago

Molloy Family

Molloy Family

DONATION: $100

2 years ago

INTEC Group

INTEC Group

DONATION: $100

2 years ago

Setty - Power

Setty - Power

DONATION: $100

3 years ago

Kathi & Vinny Kennedy

Kathi & Vinny Kennedy

DONATION: $50

3 years ago

Conor & Staci O'Neill

Conor & Staci O'Neill

DONATION: $50

3 years ago

Joseph Mastaler

Joseph Mastaler

DONATION: $100

3 years ago

Meehan Family

Meehan Family

3 years ago

The Oller Family

The Oller Family

DONATION: $100

3 years ago

Kristin, Eric, Casey & Sami Robinson

Kristin, Eric, Casey & Sami Robinson

DONATION: $50

Christopher must be so proud of you all! You have never forgotten him and you honor his memory every day! 3 years ago