September is Pain Awareness Month, and Invisible Illness Week is this month as well!
September 08, 2016
I've had migraines since childhood, and chronic migraines since the age of 10. In spite of my parents providing me with the very best medical care and taking me to the nations best clinics, my migraines were still always out of control.
Migraineurs have limited treatment options. All of our preventative medications options are used "off-label," meaning that they were designed to treat other diseases/illnesses and that not all are FDA approved in the treatment of Migraine. Our rescue medications cause "rebound" or Medication Overuse Headache- meaning that if you use it too much, it just creates more migraines. Many are allergic to Triptans (Imitrex, Amerge, Frova, etc.), NSAIDs create ulcers over time, and opioids are a last resort that results in many migraineurs being unjustly and unfairly categorized as "drug seeking." Surgical treatment options like nerve decompression or neurostimulators can help many, but often are not covered by insurance (as they are not yet FDA approved) and therefore unattainable due to cost. My own neurostimulator surgery, paid for Out-Of-Pocket, would have been the price of a house if St. Jude and my wonderful doctor had not given my family a very big discount. It is one of the many reasons I support the Migraine Research Foundation: We need more options for treatments, and more research would hopefully mean more FDA approvals for these treatment options- and then insurance companies would be required to approve payments on them.
I support the Migraine Research Foundation and am proud to be an Ambassador with the opportunity to represent and speak on behalf of migraineurs. MRF gives grants for really wonderful research programs. To read about these programs, head on over to http://migraineresearchfoundation.org/about-mrf-grants.html
I will be setting up a blog in the near future to tell my Migraine Stories and share my knowledge of Migraine Disease.
About MRF, and some statistics from them:
Since 2006, the Migraine Research Foundation has awarded over $1.5 million in research grants in areas of basic science, genetics, epidemiology, clinical, and translational work in new treatment targets.
- Headache disorders rank in the top ten of the world's most disabling medical illnesses.
- 14 million people suffer from chronic daily headache.
- 10% of school-aged children suffer from migraine.
- 113 million work days are lost each year in America due to migraine, costing American employers $13 billion.
As fundraising is through my Ambassadorship with MRF and done with Crowdrise, donations never pass through my hands/bank, but go from Crowdrise straight to the Migraine Research Foundation.
Also, Crowdrise takes a small percentage of the donated amount as an operation fee. Please be aware of this upon checkout when they ask to add a 10% fee. This fee does not go to MRF but to further funding of Crowdrise. It is optional and you may set it to $0.