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Jeff Katz's Fundraiser:

Mud for Mego (EDS Awarness!)

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Jeff's Photo

BENEFITING: EDS TODAY

ORGANIZER: Sarah

EVENT: Tough Mudder Atlanta 2016

EVENT DATE: May 07, 2016

Jeff Katz

THE STORY:

Sarah Pony wrote -

My sister Megan lives with Ehlers-Danlos Syndrome - Vascular Type. She received her life changing diagnosis in 2007 after she ruptured her liver (and nearly bled out internally) by leaning on a table. Fast forward to Memorial Day 2010 when she ruptured her colon rolling over in bed... That moment changed her life even more because now she lives with an Ileostomy. Ehlers Danlos Syndrome (EDS) comes in many variations, but it all has to do with malfunctioning collagen. The glue for our bodies has formed incorrectly and that causes a lot of complications in individuals diagnosed with EDS. EDS isn't rare, is under diagnosed and misdiagnosed. In order to raise awareness for this unknown disease I will be running another Tough Mudder in Atlanta. Since Megan cannot participate in events like these I am going to run it in her honor. My goal is to raise not only awareness, but money to be donated to the Ehlers-Danlos National Foundation Research. Please take a minute and educate yourself on this not widely recognized disease. MUD FOR MEGO!!!! Help me raise awareness for Ehlers-Danlos Syndrome so that while it may be an invisible illness, it's not invisible. Help me fight like a Zebra. ALL MONEY RAISED WILL GO TO ednf.org , for Ehlers-Danlos National Foundation Research, http://ednf.org/donate click on in that link if you'd rather donate straight to their website, no worries.

The Team: $50 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Sarah Pony

Amount Raised

$50

 

3% Raised of$1,500 Goal

Fundraiser Title

Jeff Katz

Amount Raised

$0

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