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Pam Bower - MSA Coalition Board of Directors' Fundraiser:

MSA Coalition's Multiple System Atrophy Research Fund

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Pam Bower via Crowdrise
December 03, 2013

Today is Giving Tuesday. Please share this link and support our mission to defeat Multiple System Atrophy. http://bit.ly/1bVJdkz  See more
Pam Bower - MSA Coalition Board of Directors

THE STORY:

Multiple System Atrophy is a rare, life limiting neurological disease, so rare that most doctors have not even heard of it.  For those diagnosed, it is a death sentence.  There are no drugs that stop it's relentless progression. 

Over the course of 5 to 10 years, victims are robbed of their ability to walk, talk, chew, swallow and breathe, yet until the end their intellect remains intact.   Not only are their bodies assaulted, but also their dignity and sense of worth.  The stigma of having a rare disease leaves them feeling isolated from their community and even from relatives and friends who don't understand or can't cope with the reality of the disease.   Families remain in a constant state of grief as the disease eats away at their loved one.

People diagnosed with cancer are offered tools with which to fight the disease...  surgery, radiation, chemotherapy. People diagnosed with Multiple System Atrophy simply have no such tools to fight with.  With your help we can change that.

The MSA Coalition has an established Multiple System Atrophy Research Fund to support finding the cause of MSA and eventually a cure. It is the MSA Coalition’s belief that with a small number of MSA patients in the U.S. and globally, a centralized MSA Research Fund is critical to pooling money so the funds can be used in the most effective way possible.  

The need for donations has never been more urgent. 

As of May 2013 I know of TWO promising clinical research projects which are unable to start accepting MSA patients until their funding needs are met. 

The time is now to take action.  Please help by donating today.

Please Donate and click on the Create A Fundraising Page button to help me fundraise for this amazing organization. 

Thank you for your generous support.

Pam

 

Find out more about the MSA Coalition

Press Releases:

May 20, 2013 - Multiple System Atrophy (MSA) Research Grant Program Announced

April 22, 2013 - The SDS/MSA Support Group Officially Changes Name to the Multiple System Atrophy Coalition

**As a 501(c)3 charity all donations made to the MSA Coalition and the MSA Research Fund are tax deductible for U.S. tax payers. 

 

DONATE

To This Fundraiser

$14,733

MONEY RAISED
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  • Pam Bower

    $50

  • Michael Emma

    $100

  • Charmayne Bischel

     

  • Jeanne Robichaud

    $20

  • Boogiebobs Records

    $25

  • Grace Sourapas

    $75

  • Debbie Zaccaria

    $20

  • Brett & Annalise Bischel

     

  • Lisa Stout

    $50

  • Beth & Dan Stoner

     

  • Cindy Rechsteiner

    $50

  • The Cooley Family

     

  • Brad, Carrie, Johnny and Violet Bischel

     

  • Jack and Melody Bush

    $100

  • Jane Kirkpatrick

     

  • Earl Cutter

     

  • Holly's Mom

    $25

  • Anonymous

    $20

  • Alan Williams

    $250

  • Jodi Holley-Jones

    $100

  • Kesha Holley-Whitaker

     

  • CHARLENE HOLLEY

    $50

  • Wendy Wesley

    $50

  • Paul A Moreau

    $20

  • Andy Zou

    $50

  • Nick Wade

    $1,000

  • Marlene Gable

    $100

  • Anonymous

    $500

  • Bob Yant

    $50

  • Anonymous

    $50

  • Atlassian, Inc

    $1,000

  • Christine Koenig

    $100

  • Rafael Sánchez -Montserrat

    $25

  • The Mayer-Sangster family

    $2,000

  • Susan Brandwein

    $100

  • Diane McLaughlin

    $40

  • Janet Goldberg

    $50

  • John Francis Bovello

    $50

  • Kathy Bovello and Joan Lee

    $100

  • The Associates of the Portland Marriott Downtown Waterfront

    $50

  • Jim Magno

    $40

  • FTA Staff

    $100

  • Paul & Jodie Siegle

    $50

  • Pauline Coleman

    $50

  • Mike and Carol Trigonoplos

    $50

  • Billy Finnerty & Beth Deet

    $2,500

  • Doris & Avni

    $10

  • Natasha, Trent, Jackson, Sawyer, and Ben

    $20

  • Randy Brantley

    $400

  • Sam, Lisa, Sydney, Mack, and Billy

    $30

  • Brian, Mia, Kyle, and Carter Sellers

    $30

  • Deborah Padgett

    $20

  • Randy and Joyce

    $50

  • Trish Cooksey

    $30

  • Deborah Padgett

    $50

  • Timmy &Trina;

    $100

  • Darlene Kellum Blackwell

    $20

  • Jeremy,Stacey,and Beau

    $50

  • POLLARD CONSTRUCTION COMPANY

    $200

  • Spotlight Dance Studio

    $950

  • Larry Milton

    $100

  • Ricky, Chrissy and Ricky Jr

    $25

  • Mrs. Kathleen Bovello

    $300

  • Linda Sacco

     

  • Pam Eberly Memorial

    $1,600

  • ANOMUS

    $45

  • ANOMUS

    $10

  • Aaron and Gladys Goldberg

    $100

  • Larry Milton and Family

    $500

  • Patsy & Gary Sands

    $50

  • Sawyer Rich

    $10

  • Ben Rich

    $10

  • Trent and Tasha Rich

    $50

  • Jodi Holley-Jones

    $68

  • Billy & Maggie Wise..Johns sister & brother-in-law

    $40

  • Don Bllue and Pat Aiello

    $100

  • Larry Milton

    $100

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147% Raised of $10,000 Goal

Fundraise for this Campaign

The Team: $14,733 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Pam Bower - MSA Coalition Board of ...

Amount Raised

$4,235

 

42% Raised of $10,000 Goal

Fundraiser Title

M, Logan and Brianna Gable

Amount Raised

$2,550

Fundraiser Title

Pam Eberly

Amount Raised

$1,600

 

53% Raised of $3,000 Goal

Fundraiser Title

Charmayne Bischel

Amount Raised

$575

Fundraiser Title

Jodi Holley-Jones

Amount Raised

$238

 

16% Raised of $1,500 Goal

Fundraiser Title

Michael Emma

Amount Raised

$150

Fundraiser Title

Wendy Wesley

Amount Raised

$50

 

5% Raised of $1,000 Goal

Donor Comments

Larry Milton

Larry Milton

DONATION: $100

3 years ago

Don Bllue and Pat Aiello

Don Bllue and Pat Aiello

DONATION: $100

In memory of M Gable. 3 years ago

Billy & Maggie Wise..Johns sister & brother-in-law

Billy & Maggie Wise..Johns sister & brother-in-law

DONATION: $40

3 years ago

Jodi Holley-Jones

Jodi Holley-Jones

DONATION: $68

We are still praying for a cure. Love and miss you daddy! 3 years ago

Trent and Tasha Rich

Trent and Tasha Rich

DONATION: $50

We love you and miss you M. 3 years ago

Ben Rich

Ben Rich

DONATION: $10

Love and miss you M. 3 years ago

Sawyer Rich

Sawyer Rich

DONATION: $10

Love and miss you M. 3 years ago

Patsy & Gary Sands

Patsy & Gary Sands

DONATION: $50

In memory of our dear friend Marlene Gable. 3 years ago

Larry Milton and Family

Larry Milton and Family

DONATION: $500

In loving memory of "M". 3 years ago

Aaron and Gladys Goldberg

Aaron and Gladys Goldberg

DONATION: $100

In memory of Marlene 3 years ago