Pam Bower wrote -
Multiple System Atrophy is a rare, life limiting neurological disease, so rare that most doctors have not even heard of it. For those diagnosed, it is a death sentence. There are no drugs that stop it's relentless progression.
Over the course of 5 to 10 years, victims are robbed of their ability to walk, talk, chew, swallow and breathe, yet until the end their intellect remains intact. Not only are their bodies assaulted, but also their dignity and sense of worth. The stigma of having a rare disease leaves them feeling isolated from their community and even from relatives and friends who don't understand or can't cope with the reality of the disease. Families remain in a constant state of grief as the disease eats away at their loved one.
People diagnosed with cancer are offered tools with which to fight the disease... surgery, radiation, chemotherapy. People diagnosed with Multiple System Atrophy simply have no such tools to fight with. With your help we can change that.
The MSA Coalition has an established Multiple System Atrophy Research Fund to support finding the cause of MSA and eventually a cure. It is the MSA Coalition’s belief that with a small number of MSA patients in the U.S. and globally, a centralized MSA Research Fund is critical to pooling money so the funds can be used in the most effective way possible.
The need for donations has never been more urgent.
As of May 2013 I know of TWO promising clinical research projects which are unable to start accepting MSA patients until their funding needs are met.
The time is now to take action. Please help by donating today.
Please Donate and click on the Create A Fundraising Page button to help me fundraise for this amazing organization.
Thank you for your generous support.
**As a 501(c)3 charity all donations made to the MSA Coalition and the MSA Research Fund are tax deductible for U.S. tax payers.