BENEFITING: Muscular Dystrophy Association
ORGANIZER: Muscular Dystrophy Association
EVENT DATE: Nov 06, 2016
In September 2011 I began working at the Muscular Dystrophy Association, my first job after college. Despite my nonprofit studies and even fundraising for the cause as a teenager, I could never be fully prepared for how the organization would impact my life over the next four and a half years.
If you’re asking “What is muscular dystrophy?” you’re not alone….To simply describe something that is incredibly complicated and widely unknown- muscular dystrophy is a progressive and degenerative disease of the muscles. It’s an umbrella term and covers diseases that you may be more familiar with like ALS (Lou Gehrig’s), Duchenne or SMA. Muscular dystrophy affects both children and adults, it can be genetic or sporadic, it can take away every day freedoms that those with healthy muscles easily take for granted and it can be fatal. For someone living with muscular dystrophy turning over in bed, brushing your teeth, hugging someone you love, catching up verbally with a friend and even breathing can be a difficult task, and in some cases, an impossible one.
The Muscular Dystrophy Association is the world’s leading nonprofit organization that is dedicated to fight muscular dystrophy and to give individuals – and the families who love them – strength, independence and life. Our mission is to help kids and adults with muscular dystrophy live longer and grow stronger. We do that by:
- Funding over 200 different research projects to develop treatments and, hopefully one day, a CURE.
- We do that by providing CARE for the individuals that we serve from day one - giving families access to MDA Care Centers and educational resources.
- And we do that by being a CHAMPION for the kids and adults that we serve, empowering them through MDA Summer Camp and providing access to support groups.
None of this would be possible without MDA’s generous sponsors and supporters. So, I’m celebrating my five year anniversary with MDA by joining our running program, MDA Team Momentum, for the 2016 New York City Marathon and committing to raising $5,000 while I train and race. I’ve had the life changing privilege to help start up the Team Momentum program and have spent the last two years being a cheerleader to over 700 people who have dedicated their muscles and finish lines to MDA. It’s safe to say that the families that I have met over the past five years have wrecked my heart in the best way possible. It has been humbling and an honor to champion them and to inspire and equip our participants to raise money to help advance MDA’s mission. I couldn’t be more excited to step away from the sidelines and rock my own 26.2 miles in the Big Apple on November 6th!
I wake up every day and am thankful that I can tell my husband that I love him, thankful that I can hold a warm cup of coffee on a Sunday morning, thankful that I can pick up the phone to call a friend and thankful that I can go for a run at any moment that I would like to.
And so I run. I run for Henry, Cam, Finley, Devin, Reagan, Alice, Lizzie, Rob, Koen, Matt, Eric, Denise, Ally, Emi, Matt & Kim, Frank, Tari, the Daly family, the Hollingsworth family, Annie, Harry, Danny, Maddie, Robbie, Hugh, Jaden, Branden, Kennedy, Aaron, Ryan & Austin, Logan, Nathan and all of the incredible heroes that I have met over the years. I run in memory of Mike, Johnny, Brad, Kyle, Steve, Jane, Bob, Rachel and Luciano. I run for my crazy Team Momentum participants that have become friends and even family to me - the parents, siblings, spouses, children and friends who walk and run for someone that they love that has muscular dystrophy. I run because one day I could be that mother, that sister, that wife, that daughter, or that friend that may need someone like me and people like our Team Momentum participants to remind me that there is hope and that I’m not alone in my fight.
To support me and MDA, please click the red "Donate" button! Then, go the extra mile and share my page and this story with three people you know.
Thank you for your support as I work hard to cross my first marathon finish line and run for those who may never get the opportunity to do so. Most importantly, thank you for supporting MDA and the amazing families that we are fighting for.