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Emily Hope's Fundraiser:

MDA Team Momentum 2016 United Airlines New York City Half-Marathon

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Emily Hope

THE STORY:

As a member of MDA Team Momentum, I am progress. I'm training to compete in my first ever half marathon, and I'm making my miles count, bringing help and hope to more than 1 million Americans living with muscle disease. including my friend's son, David.

I met Michelle and her son, David, three years ago. David has Duchenne Muscular Dystrophy (DMD). In those three years I've watched him play and grow and learn. He's started kindergarten and he has become a big brother, twice! If you didn't know he has DMD, you may not even guess.

Even though he is the oldest, he gets tired and has to rest more than his sisters. At night his parents carry him to bed. He's now at the age where he's starting to realize that he is different, which is possibly the most heartbreaking part of it all. His legs cause him pain especially at night and asks his mommy, "Why do I hurt? Why can't I play like my sisters? Why do I have to go to the doctor so much?" 

Every dollar I earn helps the medical community fighting DMD run FASTER, and we can see the finish line.  There are treatments in clinical trials RIGHT NOW on the verge of being able to treat HUNDREDS of thousands of boys with Duchenne, just like David.  And a treatment for David's specific genetic mutation is gearing up for clinical trial in early 2016.  

That is why I run!

For David, for the HOPE that we can CURE this terrible disease Every mile, every dollar, every step we take in the direction of treatment brings us all closer to our most desired dreams: to spend another day with the ones we love.

I am truly blessed that my family and I are healthy. I have everything I could ever need. I don't need things, and I have found instead a purpose, a cause that gives me so much more that material possessions ever could. Please donate to my race to help David and others like him.

Together, we are progress

Please join me! Sponsor my effort with a donation - and be sure to find out if your employer offers a matching gift program; it could make your gift go twice as far. Leave the legwork to me, and together we'll move toward a future in which muscle health, not muscle disease, prevails.

The 2016 United Airlines NYC Half will take runners from around the city and the globe on a 13.1-mile tour of NYC. Led by a talent-packed roster of American and international elites, runners will stop traffic in Manhattan, from Central Park through Times Square to South Street Seaport!


 

$1,235

MONEY RAISED
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  • Mom and Dad

    $25

  • Emily

    $300

  • Hewlett Packard

    $300

  • Jenn Schlatter

    $10

  • Anna

    $20

  • Nichole

    $50

  • The Bussiere Family

     

  • Brandon R

    $100

  • Lauren

    $145

  • Jenny

     

  • Dave Bussiere

    $200

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112% Raised of $1,100 Goal

The Team: $20,181 TOTAL RAISED SO FAR

Fundraiser Title

Stephanie Goldklang

Amount Raised

$2,754

Fundraiser Title

Meg and Steve

Amount Raised

$2,225

 

101% Raised of $2,200 Goal

Fundraiser Title

Michelle Bussiere

Amount Raised

$2,150

 

134% Raised of $1,600 Goal

Fundraiser Title

Maghan Avery

Amount Raised

$1,771

 

161% Raised of $1,100 Goal

Fundraiser Title

Tiffany Tillotson

Amount Raised

$1,631

 

102% Raised of $1,600 Goal

Fundraiser Title

Kelsey Taylor

Amount Raised

$1,480

Fundraiser Title

Jennifer Husman

Amount Raised

$1,250

 

114% Raised of $1,100 Goal

Fundraiser Title

Emily Hope

Amount Raised

$1,235

 

112% Raised of $1,100 Goal

Donor Comments

Dave Bussiere

Dave Bussiere

DONATION: $200

In honor of Joey Read 3 years ago

Jenny

Jenny

3 years ago

Lauren

Lauren

DONATION: $145

3 years ago

Brandon R

Brandon R

DONATION: $100

3 years ago

The Bussiere Family

The Bussiere Family

Thank you for fighting so hard with us to save our little man. We love you! 3 years ago

Nichole

Nichole

DONATION: $50

3 years ago

Anna

Anna

DONATION: $20

3 years ago

Jenn Schlatter

Jenn Schlatter

DONATION: $10

3 years ago

Hewlett Packard

Hewlett Packard

DONATION: $300

3 years ago

Emily

Emily

DONATION: $300

Super Bowl Squares 3 years ago