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my Nephews 2nd bone marrow transplant

Organized by: jordan smith

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EVENT DATE Jun 23, 2016


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my Nephews 2nd bone marrow transplant josh is 13 years old from Somerset and lives with his Mum, Dad, 2 Sisters and his Brother. On the 6th April 2015 Josh was Diagnosed with Leukaemia - Atypical CML Monomonasomie 7 and GATA 2. Josh is possibly the only child in the UK to have this very rare condition. On the 3rd July 2015 Daryl received a Bone Marrow Transplant with Bone Marrow from his older brother, Brad. Josh did really well with this procedure and this was a really positive step for him. Unfortunately on the 15th April 2016 Daryl was told he had relapsed and would need further treatment. As this would be Josh 2nd round of treatment we had to apply for NHS funding, this has taken a lot of time and we have now been told at the end of this long wait he is not eligible for anymore NHS funding. We have decided to raise money for the treatment for Josh ourselves. We have been told to go private the cost is between £80 - £100K so we need to start this immediately as Josh is becoming weaker each day. If you feel you would like to donate to help Josh fund further treatment we would really appreciate anything you can give! An appeal has been made but we don't have the time to wait to see if the decision is changed, we need to start this now. Donate via paypal :


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jordan smith

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