BENEFITING: 5P SOCIETY
EVENT DATE: May 01, 2016
Last May, in honor of Mya Fernandes, we held our first "Mya's 5k Walk for 5p-", to raise awareness of 5p-, a rare genetic syndrome. It was an enormous success! We had over 150 participants at the walk, while raising over $7,000 for the 5p- Society to continue their mission of raising awareness, research, and to educate and support families to enrich the lives of those affected by this rare syndrome. The success of last year's walk wouldn't have been possible without the generous donations, support, and volunteers from family, friends, local businesses, and community.
With such success last year, and ambition in making this walk an annual event, we are having our second walk this year, "Mya's 2nd Annual 5k Walk for 5p".
The Origins this Walk
Mya Fernandes was diagnosed with 5p- (Five P Minus) syndrome shortly after her birth in July 2008. The syndrome is also known as Cri du Chat, meaning "cry of the cat", as children with this syndrome sound similar to a cat's cry. 5p- is a rare syndrome, occurring in about 1 in every 50,000 births across all ethnic groups and geogrpahic locations. Those with 5p- have moderate to severe cognitive and physical disabilities as well as other special medical needs.
As with many genetic syndromes and disabilities, those having access to education, services, activities, opportunities, community acceptance, and love, are proven to have an exponential improvement in the quality of life over those without access to the same opportunities. Mya is a prime example of this. With all of her hard work, the support of her family, friends, educators, community, and the knowledge, education, and support groups the 5p- Society has provided over the years, she has and continues to exceede all expectations.
The 5p- Society has organized an event called "Virtual 5k for 5p-". This is a nationwide effort to empower 5p- famlies to promote awareness in their local communities. Raising awareness, brings attention. The attention needed to continue to recruit researchers, doctors, educators, and service providers, to help us better understand this syndrome and what we can do to further enrich the lives of those affected by this syndrome.
In the theme of the "Virtual 5k for 5p-" event, Mya's parents, Erin and Bob, have organized "Mya's 2nd Annual 5k Walk for 5p". It will be held on May 1st at 9:00am on the track and field at San Ramon Valley High School in Danville.
A 5k walk is a little over 12 laps around the track. We don't expect everyone to complete the 5k, just you being there is more than we could ask for. Our goal is to raise $7,500 for the 5p- Society this year!. With everyone's support, we are very confident we can hit that goal. We appreciate all of your support. Mya appreciates it the most!
100% of donations goes directly to the 5p- Society, a 501(c)3 not-for-profit organization.